Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello, @aliciabusiness5, and welcome to Mayo Connect. I you are dealing with lung NETs as well...

https://connect.mayoclinic.org/comment/1266869/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 8:47pm

Comment

I appreciate you adding information about your journey with NETs to this discussion group, @quinnie2023. I'm...

https://connect.mayoclinic.org/comment/1166556/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2024

Comment

Welcome @kate777, I can imagine that your terrified that Merkel cell may have spread. Spots on...

https://connect.mayoclinic.org/comment/777248/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 25, 2022

Comment

I finished 4 PRRT treatments in January 2022 with significant reduction of tumor burden in liver....

https://connect.mayoclinic.org/comment/1354582/

Discussion: PRRT and lanreotide questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23 11:39am

Comment

My husband has a neuroendocrine tumor in the small intestine found by accident as they were...

https://connect.mayoclinic.org/comment/1272927/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2 8:35pm

Comment

I have heard of cases in excess of 20 years on SSA. I Believe Lano is...

https://connect.mayoclinic.org/comment/1011808/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2024

Comment

I was told surgery was not an option and I did not press for further explanation,...

https://connect.mayoclinic.org/comment/1000130/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2024

Comment

Doctor was very dismissive. Had thyroid out due to covered with nodules 10 years ago. Also...

https://connect.mayoclinic.org/comment/905728/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 1, 2023

Comment

Hello Elenor, I too was diagnosed with grade 1 stage 4 NET colon cancer in September....

https://connect.mayoclinic.org/comment/1283867/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17 9:31am

Comment

I understand you have had neuroendocrine tumors for many years. Were you receiving any treatment prior...

https://connect.mayoclinic.org/comment/1171846/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

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