Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,627 total results

Comment

When I was diagnosed that my NET had come back 2 1/2 years after my liver...

https://connect.mayoclinic.org/comment/822159/

Discussion: Stage 4 Carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7, 2023

Comment

My husband on 1/22/2022 was diagnosed 3 mm carcinoid tumor in his small intestines. We found...

https://connect.mayoclinic.org/comment/1003703/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 3:43pm

Comment

@margaret12 I had fatigue and stomach issues (cramping and diarrhea) off and on beginning in August....

https://connect.mayoclinic.org/comment/812472/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Comment

Welcome and thanks, Margaret for the questions! To respond to your questions: My PET/CTs have been...

https://connect.mayoclinic.org/comment/807203/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

Comment

Hi rockchick. Congrats on your successful surgery. I can understand that you are scanned out. I...

https://connect.mayoclinic.org/comment/813394/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Comment

On a Thursday a MRI on my prostrate showed suspicious cancer in the small intestine my...

https://connect.mayoclinic.org/comment/750473/

Discussion: Just got the news… stage 2 Carcinoid tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2022

Comment

I hope my comments helped. Good luck. You have nothing to lose by trying dietary restrictions....

https://connect.mayoclinic.org/comment/854487/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

Comment

Very similar symptoms. Stomach pain, constant diarrhea, and always feeling sick that got progressively worse over...

https://connect.mayoclinic.org/comment/951274/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 21, 2023

Comment

What type of embolization did you have? Did it include radiation? I have been on lanreotide...

https://connect.mayoclinic.org/comment/977539/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2023

Comment

I was diagnosed Dec. 2021 Tumors started in the small intestines and metastasized to the liver...

https://connect.mayoclinic.org/comment/1035643/

Discussion: What questions should I ask oncologist tumor types and chemo treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18 8:48am

Visiting Mayo Clinic

Follow

4530

1 hour ago

Pancreatic Cancer

Follow

2239

2 hours ago

Digestive Health

Follow

12637

3 hours ago

Follow

6939

4 hours ago

Follow

5518

5 hours ago