Neuroendocrine Tumors (NETs) Support Group

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Comment

Lungs, inoperable, recent chest x ray picked up something on thyroid. I will have a Pet...

https://connect.mayoclinic.org/comment/1321199/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2025

Comment

They are flushing versus hot flashes. Flushing just turns you red, but you do not sweat....

https://connect.mayoclinic.org/comment/1203258/

Discussion: What does my dentist need to know about my NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3, 2025

Comment

Hello @rachismarie, I'm glad that you found Mayo Connect. We have a number of members who...

https://connect.mayoclinic.org/comment/1181711/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

Comment

As a GI nurse for 32 years, now retired. I can honestly say that no amount...

https://connect.mayoclinic.org/comment/1175814/

Discussion: How many doctors did you see to get to your NETS diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2024

Comment

I also have tumor metastases on my spine and ribs, unknown primary. Diagnosed Jan 2020, multiple...

https://connect.mayoclinic.org/comment/810800/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

Comment

Well had the surgery. I can’t lie anything with the lungs is rough. I’ve been better...

https://connect.mayoclinic.org/comment/800389/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

Comment

I had a really hard time with recurrance with mets to my lungs, andfor the first...

https://connect.mayoclinic.org/comment/711752/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: May 27, 2022

Comment

I am very curious also. I had breast cancer 11 years ago, now I have a...

https://connect.mayoclinic.org/comment/664484/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 22, 2021

Comment

Teresa, I did have a PET scan of the lungs and a biopsy of the largest...

https://connect.mayoclinic.org/comment/657598/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2021

Comment

I live in Southern Oregon, so not close to Mayo though grew up in S. Dak.,...

https://connect.mayoclinic.org/comment/1076692/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

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