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Discussions (191)
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Comment
It is funny. That is the final scan I got for the oncologist to tell me...
https://connect.mayoclinic.org/comment/833905/
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Discussion:
Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 29, 2023
Comment
Good morning, my primary is also my small intestine, and it spread to my liver. Diagnosed...
https://connect.mayoclinic.org/comment/1368874/
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Discussion:
Neuroendocrine Tumor
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 12 8:26am
Comment
Grade 2. My Whipple went well but Mets to the liver in about a year. PRRT...
https://connect.mayoclinic.org/comment/1060558/
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Discussion:
Questions Regarding Results after PRRT Treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 1, 2024
Comment
Sherry, your experience sounds exactly like mine. I have been getting injections of octreotide every 4...
https://connect.mayoclinic.org/comment/1268153/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 27 3:47pm
Comment
Hello @tereh, I hope you get some information to make you more comfortable with your treatment...
https://connect.mayoclinic.org/comment/1218874/
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Discussion:
I am one year out with my diagnosis just finished 4th round of PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 22 10:13am
Comment
Thank you for posting all this information. I know we will have to see the Dr....
https://connect.mayoclinic.org/comment/1224998/
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Discussion:
68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 29 7:55pm
Comment
I also have Carcinoid Syndrome, PET scan shows it started in the small intestines and metastasized...
https://connect.mayoclinic.org/comment/878862/
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Discussion:
Where can I find a carcinoid syndrome specialist in Florida?!
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 15, 2023
Comment
Hi, I was recently diagnosed with, carcinoid syndrome, the tumors (NET) started in my small intestine...
https://connect.mayoclinic.org/comment/815553/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 22, 2023
Comment
I was on lanreotide now on octreotide and yesterday my MRI showed my tumors are still...
https://connect.mayoclinic.org/comment/741450/
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Discussion:
Treatments for Carcinoids
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 25, 2022
Comment
@harley4650 So sorry to hear about the progression. What about the newly approved histotripsy procedure for...
https://connect.mayoclinic.org/comment/1047144/
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Discussion:
Spreading NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 7, 2024
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