Neuroendocrine Tumors (NETs) Support Group

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Comment

@smdoonan Your last sentence about consistently done at the same lab is probably the important factor....

https://connect.mayoclinic.org/comment/179374/

Discussion: CGA (Chromogranin) results from different labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2018

Comment

Thank you for sharing. my husband has P-NET. and was getting Sandostatin shots monthly, they gave...

https://connect.mayoclinic.org/comment/853060/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2023

Comment

Thanks for the reply Scott. I too am having a 6 mos post surgery follow up...

https://connect.mayoclinic.org/comment/847654/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2023

Comment

Hi, Surgery, July 2022, was at Hartford Hospital in Connecticut. There was no spread of disease...

https://connect.mayoclinic.org/comment/953818/

Discussion: Anyone have a small pancreatic IPMN cyst that turned out to be cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2023

Comment

Hello @physedr and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/1076299/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 9:40am

Comment

My husband has one tumor on his pancreas and “innumerable” lesions in his liver. They started...

https://connect.mayoclinic.org/comment/831010/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Comment

Jeannie, take a deep breath, you are among many of us that have gone down this...

https://connect.mayoclinic.org/comment/1068055/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14 8:49pm

Comment

My wife has a multi-disciplinary team with a NET Specialist, and even after all the treatment...

https://connect.mayoclinic.org/comment/1056767/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25 4:05am

Comment

Diagnosed in 2019 I’m now 65 have a pancreatic net that metastasis in the liver. Tumor...

https://connect.mayoclinic.org/comment/1110111/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22 5:39pm

Comment

Hello folks, currently being treated at City Of Hope. 10 cm tumor incidentally found on GI...

https://connect.mayoclinic.org/comment/808685/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2023

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