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2,247 total results
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Discussions (191)
Comments (2,056)
Comment
I am recently diagnosed with metastatic neuroendocrine tumors in my liver. No know origin. Grade 2...
https://connect.mayoclinic.org/comment/1171826/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 11, 2024
Comment
@gismole1: how has your histotripsy treatment been - both in side effects and scan results? Please...
https://connect.mayoclinic.org/comment/1158735/
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Discussion:
PRRT side effects and results
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 18, 2024
Comment
I have an unknown primary NET maybe intestines It has metastasized to my liver periportal lymph...
https://connect.mayoclinic.org/comment/943430/
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Discussion:
Anyone have a neuroendocrine tumor (NET) in the spine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 7, 2023
Comment
Unfortunately, I was not accepted to the trial study (COMPOSE). In addition to neuroendocrine cancer in...
https://connect.mayoclinic.org/comment/839259/
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Discussion:
High grade 2 and 3 neuroendocrine
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 7, 2023
Comment
I too have an occasional glass of wine or 2 when out for dinner with friends.....
https://connect.mayoclinic.org/comment/1231279/
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Discussion:
How does Alcohol use affect Liver NET?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 7 7:20am
Comment
Hello @beachboyarkansas and welcome to the NETs support group on Mayo Connect. I really appreciate you...
https://connect.mayoclinic.org/comment/1111157/
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Discussion:
NET on liver: Question about treatments when no symptoms
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 24, 2024
Comment
I have an unknown primary mine has spread to my liver spine and ribs I have...
https://connect.mayoclinic.org/comment/980862/
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Discussion:
Anyone have a neuroendocrine tumor in small intestine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 15, 2023
Comment
Hi Teresa, Dx was in 2009 when I went to the ER with worse headache I...
https://connect.mayoclinic.org/comment/933446/
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Discussion:
Anyone still have pancreas pain while taking Lanteotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 20, 2023
Comment
I also have stage 4 Neuroendocrine in the body pancreas along with small spots on my...
https://connect.mayoclinic.org/comment/796911/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 15, 2023
Comment
Eating well but have lost around 12 pounds since start of Ocerotide in April. In retrospect...
https://connect.mayoclinic.org/comment/720098/
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Discussion:
New to NETs: Found lesions on liver during a health check
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 22, 2022
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