Neuroendocrine Tumors (NETs) Support Group

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Comment

My husband was diagnosed 2 years ago after finding a 2” tumor pressing on his spinal...

https://connect.mayoclinic.org/comment/885643/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Comment

Chemo worked for me with my pnet. I was on CAPTEM for 13 months and now...

https://connect.mayoclinic.org/comment/1030195/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 8 10:04pm

Comment

I forgot to mention there are no support groups here because it’s somewhat secluded (like the...

https://connect.mayoclinic.org/comment/184514/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2018

Comment

Many factors to consider—grade of tumors, locations, whether well-differentiated or poorly differentiated. A close friend of...

https://connect.mayoclinic.org/comment/861020/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Comment

Hi Nana120 I can relate to you. I am having my 3rd Lanreotide this week. I...

https://connect.mayoclinic.org/comment/940604/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Comment

Hello, my husband was diagnosed with stage four metastatic PNET cancer last October. He has a...

https://connect.mayoclinic.org/comment/866675/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Comment

Hello. Diagnosed almost 2 years ago. Had one year of uncontrollable diarrhea. Diagnosed with IBS at...

https://connect.mayoclinic.org/comment/952145/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2023

Comment

I was diagnosed with a PNET in 11/2022. It is a well differentiated tumor of 1.3...

https://connect.mayoclinic.org/comment/971141/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

Comment

@harley4650 I found an article about the two west coast hospitals offering histotripsy -- second link....

https://connect.mayoclinic.org/comment/1047147/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7 10:47pm

Comment

Hi, I'm new to this group. Was dx Dece. of 2021 after developing a bowel obstruction....

https://connect.mayoclinic.org/comment/826685/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2023

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