Neuroendocrine Tumors (NETs) Support Group

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Comment

Yes it is. My three large tumors on my pancreas are about half the size in...

https://connect.mayoclinic.org/comment/836328/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2023

Comment

Do any of You had 11C-5-hydroxy-tryptophan PETCT or know if Your facilities offer it. What was...

https://connect.mayoclinic.org/comment/807185/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

Comment

The VA said they tested and said they were not related.....I am finished treatment, the VA...

https://connect.mayoclinic.org/comment/284785/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 21, 2019

Comment

I had y-90 treatment on both sides of my liver. Mapping was done and couple weeks...

https://connect.mayoclinic.org/comment/1174717/

Discussion: Radioembolization Is My Next Step

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 17, 2024

Comment

Hi - PNet diagnosis in September of ‘20 …. (4) total tumors …. Three in pancreas...

https://connect.mayoclinic.org/comment/1304507/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 15 7:57am

Comment

I’m sorry you’re going through this. My husband had the same surgery except for the liver...

https://connect.mayoclinic.org/comment/992356/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2024

Comment

I would also recommend you have both types of petscans done. It took 5 years to...

https://connect.mayoclinic.org/comment/932546/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

Comment

We just met up with the oncologist. Actually the same Dr. that had treated a family...

https://connect.mayoclinic.org/comment/1219187/

Discussion: PNETs: What comes first? Surgery or try to shrink tumor with chemo?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22 4:46pm

Comment

Not sure what type of radiation they want you to have? I had high dose radiation...

https://connect.mayoclinic.org/comment/1244760/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24 3:26pm

Comment

Thanks for answering. My husband was diagnosed because he had an acute pain which took us...

https://connect.mayoclinic.org/comment/1276684/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7 7:38pm

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