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Discussions (73)
Comments (721)
Comment
Hi @gapsc, welcome back. Great to get an update from you. You'll notice I moved your...
https://connect.mayoclinic.org/comment/134281/
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Discussion:
Typical Carcinoid Tumor in Lungs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 10, 2019
Comment
Everyone laughs when I tell how mine was found. We had just ourchased a RV and...
https://connect.mayoclinic.org/comment/1289964/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 25 8:20pm
Comment
This is my opinion with the facts for myself. I started octreotide twelve and a half...
https://connect.mayoclinic.org/comment/1162233/
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Discussion:
NET on liver: Question about treatments when no symptoms
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 24, 2024
Comment
Good to know. Just frustrating that no one ever suggested the SOB on exertion was related...
https://connect.mayoclinic.org/comment/1108851/
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Discussion:
DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2024
Comment
You are Right about being your own Advocate. That's how I found out I had DIPNECH....
https://connect.mayoclinic.org/comment/1065383/
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Discussion:
Neuroendocrine cells in Breast and Lungs DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 10, 2024
Comment
Hello and thank you for your comments. The surgery was very difficult, some complication's. My treatment...
https://connect.mayoclinic.org/comment/1045936/
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Discussion:
Newly Diagnosed Pancreatic NET awaiting Distal Pancrectomy
Support Group:
Pancreatic Cancer
Posted: Apr 5, 2024
Comment
Yes, in the lungs, pretty scary, but slow growing, hopefully it stays that way! They changed...
https://connect.mayoclinic.org/comment/1003927/
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Discussion:
Neuroendocrine cells in Breast and Lungs DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 26, 2024
Comment
Welcome, @clintwlively. I've added your discussion to the Neuroendocrine Tumors (NETs) Support Group as well -...
https://connect.mayoclinic.org/comment/981815/
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Discussion:
Stage four high-grade neuroendocrine carcinoma
Support Group:
Lung Cancer
Posted: Dec 16, 2023
Comment
@vtn Not sure -- when they do the tumor removal and perform pathology, they will know...
https://connect.mayoclinic.org/comment/911931/
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Discussion:
FDG PET scan vs. 68Ga DOTATATE PET scan for neuroendocrine cancer
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 12, 2023
Comment
I just had my what has become a yearly as opposed to every three to six...
https://connect.mayoclinic.org/comment/854136/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 4, 2023
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