Neuroendocrine Tumors (NETs) Support Group

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Comment

I was diagnosed with NETs in the liver December 2022, Had a PET scan to determine...

https://connect.mayoclinic.org/comment/1147007/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25 8:16am

Comment

Hi Carrie! I am do sorry to hear your news and I completely empathize with your...

https://connect.mayoclinic.org/comment/1073202/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23 9:38am

Comment

Hi Teresa, I had a tiny NET found in my rectum on my first colonoscopy. It...

https://connect.mayoclinic.org/comment/1170587/

Discussion: NET of the Rectum: Anyone at Mayo Jacksonville? What can I expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9 9:48am

Comment

I began PRRT in June 2024 and today received the 3rd infusion without any issues. I...

https://connect.mayoclinic.org/comment/1150466/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1 8:38pm

Comment

@kim1965 Hi kim1965 A lot has gone on since my last post. My tumor is stage...

https://connect.mayoclinic.org/comment/837243/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Comment

Colleen, Thank you! I was concerned with the growth hormone because it does make his organs...

https://connect.mayoclinic.org/comment/675397/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2022

Comment

I couch any comment we 'we are all different' and the treatment strategies are diverse and...

https://connect.mayoclinic.org/comment/671329/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2022

Comment

Hello @wolf359 and welcome to the NETs support group on Mayo Connect. I so appreciate you...

https://connect.mayoclinic.org/comment/930465/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2023

Comment

I eat banana pancakes once or 2 times a week ( 1egg, 1/4 cup of oats,...

https://connect.mayoclinic.org/comment/939571/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Comment

Thanks! We got a CT scan earlier this week and met with our cancer team today....

https://connect.mayoclinic.org/comment/887433/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2023

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