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Discussions (128)
Comments (1,498)
Comment
I appreciate that you shared your experiences with me. I am thinking of going for a...
https://connect.mayoclinic.org/comment/859481/
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Discussion:
Just diagnosed with PNET: Any thoughts on watch & wait approach?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 13, 2023
Comment
Hi @Sweet 63, My wife Kim was diagnosed with NET in April of this year. We...
https://connect.mayoclinic.org/comment/777027/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 24, 2022
Comment
Thank you for all the information. I have nonfunctioning lung to liver Net just found out...
https://connect.mayoclinic.org/comment/671705/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 17, 2022
Comment
I was diagnosed in 1993 by a doctor who performed a colonoscopy after heavy rectal bleeding....
https://connect.mayoclinic.org/comment/771371/
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Discussion:
NETs: Anyone has Liver debulking for liver metastasis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 9, 2022
Comment
Hi I’m Charlotte and I just became a member , I’m living with Net my first...
https://connect.mayoclinic.org/comment/747800/
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Discussion:
Learn About NETs and monthly meetings
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 10, 2022
Comment
My symptoms were bloating, severe abdominal pain resulting in slight temperature spike and vomiting. This happen...
https://connect.mayoclinic.org/comment/829669/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 21, 2023
Comment
I have had 11 tumors removed from pancreas in 2 surgeries. They were grade 2 tumors....
https://connect.mayoclinic.org/comment/843298/
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Discussion:
Recurrence in Liver after Whipple
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 14, 2023
Comment
I have metastasis liver net with unknown primary they believe it is in my gut I...
https://connect.mayoclinic.org/comment/922592/
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Discussion:
Anyone still have pancreas pain while taking Lanteotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 1, 2023
Comment
I was on Flofox chemotherapy for six months and my tumors [liver and pancreas] and a...
https://connect.mayoclinic.org/comment/824415/
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Discussion:
NET lung with Liver Metastasis (stage 4)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 11, 2023
Comment
I was diagnosed with NETs in the liver December 2022, Had a PET scan to determine...
https://connect.mayoclinic.org/comment/1147007/
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Discussion:
After initial tests/consults at Mayo: When does NETs treatment start?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 25 8:16am
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