Neuroendocrine Tumors (NETs) Support Group

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Comment

I was diagnosed 2 years ago, with stage 4 ,started in my lower intestines and metastasized...

https://connect.mayoclinic.org/comment/1202170/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 2 7:17am

Comment

Hello Karen (@immmm) - Welcome to Mayo Connect, thank you for being an advocate for your...

https://connect.mayoclinic.org/comment/167642/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2017

Comment

I’m living with net as well, pancreas which has metastasized to my liver. Discovered about 5years...

https://connect.mayoclinic.org/comment/1252221/

Discussion: Is there a particular diet to have when starting Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7 5:50am

Comment

@ds231, you're right. Fenbendazole is formulated for veterinary use and can cause irreparable liver damage. -...

https://connect.mayoclinic.org/comment/1290388/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 26 11:23am

Comment

My husband has a neuroendocrine tumor in the small intestine found by accident as they were...

https://connect.mayoclinic.org/comment/1272924/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2 8:33pm

Comment

Just FYI, my NETs in my liver that is the largest tumor is metastatic from my...

https://connect.mayoclinic.org/comment/939449/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Comment

I've been dealing with it. I had multiple tumors on my pancreas, with lesions on my...

https://connect.mayoclinic.org/comment/830996/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Comment

@stevestenberg31 My wife@Kim1965, in April 22 diagnosed with mass on pancreas and also too many lesions...

https://connect.mayoclinic.org/comment/830142/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Comment

My sister was diagnosed with a well differentiated Pancreatic Neuroendocrine tumor Grade 3 Stage 4. It...

https://connect.mayoclinic.org/comment/1105243/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2024

Comment

I took lanreotide injections for a year and the side effects for me were worse than...

https://connect.mayoclinic.org/comment/933243/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

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