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Discussions (128)
Comments (1,498)
Comment
I also had multiple small lesions in my liver and a few larger ones. I decided...
https://connect.mayoclinic.org/comment/813447/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 18, 2023
Comment
Great info and of course I’m sorry for all you’ve been through. I have not had...
https://connect.mayoclinic.org/comment/796507/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 14, 2023
Comment
Hello, I too was diagnosed with Carcinoid Center in May of 2017. Mine is located in...
https://connect.mayoclinic.org/comment/184516/
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Discussion:
Carcinoid Cancer and working
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 13, 2018
Comment
We did not have a choice with a mass on pancreas. Had to remove tail, spleen...
https://connect.mayoclinic.org/comment/842059/
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Discussion:
Who has had Distal Pancreatectomy and regretted it?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 12, 2023
Comment
I’m so glad you reached out to us with your swelling concerns. My treatment of Somatuline...
https://connect.mayoclinic.org/comment/883717/
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Discussion:
Anyone have swelling with liver metastases?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 23, 2023
Comment
How old are you? Why is surgery not an option ? Im 55yr old male. I...
https://connect.mayoclinic.org/comment/917185/
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Discussion:
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 22, 2023
Comment
I was diagnosed with a NET on the head of my pancreas at 42, after 6...
https://connect.mayoclinic.org/comment/783855/
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Discussion:
Anyone out there have PNET experiences and outcomes to share?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 12, 2022
Comment
When he was diagnosed it was already metastasized throughout his whole body. That same year they...
https://connect.mayoclinic.org/comment/176684/
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Discussion:
Anyone treated for NETs at Mayo Clinic in Jacksonville, FL
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 19, 2018
Comment
When my husband Joe was diagnosed it was already metastasized throughout his body. That first year...
https://connect.mayoclinic.org/comment/181984/
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Discussion:
Paraganglioma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 19, 2018
Comment
Hi, @amani79--My father-in-law was diagnosed last spring, after having a suspicious spot on his liver for...
https://connect.mayoclinic.org/comment/163140/
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Discussion:
How to get a second opinion for an international patient??
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 10, 2017
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