Neuroendocrine Tumors (NETs) Support Group

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Comment

What are your thoughts on having SBRT performed on a handful of small liver lesions and...

https://connect.mayoclinic.org/comment/1313342/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 26 12:20pm

Comment

I will be having another MRI 2/29/24. My last one was Feb 2023. I have multiple...

https://connect.mayoclinic.org/comment/1003831/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

Comment

A quick update for my wife is doing ok, 90 day checkup after surgery showed no...

https://connect.mayoclinic.org/comment/907311/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

Comment

I had emergency surgery in Dec of 2020. That is when the tumors were found. However,...

https://connect.mayoclinic.org/comment/728274/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2022

Comment

I have a primary pancreatic net with metastasis to the liver functioning gastrinomas. I was first...

https://connect.mayoclinic.org/comment/1035496/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2024

Comment

Hello @feebee and welcome to Mayo Clinic Connect's discussion about NETs. Personally, I am a survivor...

https://connect.mayoclinic.org/comment/217319/

Discussion: Embolization

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2019

Comment

That's fantastic news! The CAP/TEM combo has also worked well for us also. We got 80%...

https://connect.mayoclinic.org/comment/844065/

Discussion: Keep Fighting

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2023

Comment

I had pancreatic surgery in February. Have metastases in liver. Just had my first Lanreotide injection...

https://connect.mayoclinic.org/comment/826603/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2023

Comment

Thank you for your prompt response. Yes, she has NETS with liver metastasis. This is a...

https://connect.mayoclinic.org/comment/167644/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2017

Comment

Was it as large? His is 6.7 mm. What was your symptoms? Did you have multiple...

https://connect.mayoclinic.org/comment/1230654/

Discussion: Adrenocortical carcinoma (ACC) outcomes: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6 10:23am

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