Neuroendocrine Tumors (NETs) Support Group

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Comment

Nice to hear from a fellow Badger. Certianly hope all goes well for your wife's recovery...

https://connect.mayoclinic.org/comment/827544/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Comment

Thank you we do have an appointment virtually with Dr Shafique. Moms had metastasized to lungs...

https://connect.mayoclinic.org/comment/805159/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2023

Comment

We live in Orlando Florida. Mom came to the ER of Orlando Health Hospital thinking she...

https://connect.mayoclinic.org/comment/804283/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Comment

@arnana54, welcome. Carcinoid tumors are slow growing neuroendocrine tumors. If they spread it is most typically...

https://connect.mayoclinic.org/comment/794083/

Discussion: Carcinoid Syndrome: Can it spread to the head?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2023

Comment

Fingers crossed that you get answers soon, @gigi65. Wow, 2 cancers in different lungs 10+ and...

https://connect.mayoclinic.org/comment/777319/

Discussion: Husband diagnosed: high grade carcinoma with neuroendocrine features

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 25, 2022

Comment

I have been with Mayo in Rochester since Feb 2020. I have grade 3 NETs in...

https://connect.mayoclinic.org/comment/765344/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2022

Comment

Hello @amd12 I appreciate the added information. Like you, I was confused about my carcinoid tumors...

https://connect.mayoclinic.org/comment/657547/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2021

Comment

Original site small intestine/appendix with first surgery in 2004 (they thought it was an appendicitis but...

https://connect.mayoclinic.org/comment/1233382/

Discussion: How does Alcohol use affect Liver NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10 3:55am

Comment

Good morning!!! As I mentioned above, I was diagnosed January 2020, grade 3 (Ki67 17-29 depending...

https://connect.mayoclinic.org/comment/1247365/

Discussion: Anyone have experience with cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28 12:10pm

Comment

Hello @panorman3 and welcome to the NETs support group on Mayo Connect. You say in your...

https://connect.mayoclinic.org/comment/1247054/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28 7:06am

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