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Discussions (73)
Comments (721)
Comment
I was recently diagnosed with NETs in my lungs, small ones. I had the all mighty...
https://connect.mayoclinic.org/comment/1054468/
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Discussion:
NET lung with Liver Metastasis (stage 4)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 20, 2024
Comment
After 8 weeks of last PRRT treatment, Ga-68 DOTATATE PET/CT was done on Jan 29, 2024,...
https://connect.mayoclinic.org/comment/1007463/
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Discussion:
4 treatment options from my doctor, which one should I start with?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 31, 2024
Comment
One thing to ask is about the coughing and breathing exercises you must do after surgery....
https://connect.mayoclinic.org/comment/990103/
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Discussion:
Questions I should ask before surgery for Lung NETs?
Support Group:
Lung Cancer
Posted: Jan 2, 2024
Comment
@pamelasantacruz I'm just over 5 years now since diagnosis, chemo, radiation, and two surgeries (lumpectomy for...
https://connect.mayoclinic.org/comment/968340/
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Discussion:
Anyone have neuroendocrine tumor (NETs) of the breast?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 20, 2023
Comment
Tom, that’s frustrating about your incidental findings too. I hope both conditions were successfully treated. I...
https://connect.mayoclinic.org/comment/958681/
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Discussion:
Anyone have a small pancreatic IPMN cyst that turned out to be cancer?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 3, 2023
Comment
I have some small nodules in my lungs but my NET doctor said everyone has them...
https://connect.mayoclinic.org/comment/912003/
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Discussion:
FDG PET scan vs. 68Ga DOTATATE PET scan for neuroendocrine cancer
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 13, 2023
Comment
The carcinoid heart disease caused a lot of swelling to the point it was putting pressure...
https://connect.mayoclinic.org/comment/911346/
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Discussion:
Has anyone had NETs metastasized to heart?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 11, 2023
Comment
Could it be heart related, not lungs? I'm being evaluated for Carcinoid Heart Disease due to...
https://connect.mayoclinic.org/comment/863188/
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Discussion:
Net unknown cause of breathing problems
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 20, 2023
Comment
Hi @kristin3, I have over 50 typical carcinoid tumors/DIPNECH across both lungs. Because I have so...
https://connect.mayoclinic.org/comment/849316/
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Discussion:
Concerns after lobectomy for carcinoid tumor in lung
Support Group:
Lung Cancer
Posted: Apr 25, 2023
Comment
Hello @dak10, I so appreciate hearing from you again with some more information on your journey...
https://connect.mayoclinic.org/comment/827367/
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Discussion:
Newly diagnosed-Primary Malignant Neuroendocrine of Lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 17, 2023
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