Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Neuroendocrine Tumors (NETs) Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
1,626 total results
All
Discussions (128)
Comments (1,498)
Comment
I've had 2 of my scheduled 4 TACE treatments and the first one really kicked my...
https://connect.mayoclinic.org/comment/866844/
Copy link to clipboard
Discussion:
TACE Procedure: What is it like?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 26, 2023
Comment
I was on everolimus, but drs felt it was not aggressive enough. Have been put on...
https://connect.mayoclinic.org/comment/838525/
Copy link to clipboard
Discussion:
Ways to control hypoglycemia caused by insulinoma in pancreas?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 6, 2023
Comment
My husband cancer was discovered at grade 3 well differentiated stage 4. He was also given...
https://connect.mayoclinic.org/comment/1100693/
Copy link to clipboard
Discussion:
Anyone have side effects after Lanreotide injection?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 7 6:09am
Comment
My primary NET was in the small intestine lining—did not show up in any scans. I...
https://connect.mayoclinic.org/comment/918263/
Copy link to clipboard
Discussion:
Thank you for your words of encouragement on this journey! Now ???
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 24, 2023
Comment
@gneiss50 I am so pleased that you have had the additional tests as a follow up....
https://connect.mayoclinic.org/comment/809236/
Copy link to clipboard
Discussion:
Long Time Survivor With Concerns re Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 10, 2023
Comment
I was recently diagnosed (this week) with a Neuroendocrine Tumor in my lower lung and one...
https://connect.mayoclinic.org/comment/806203/
Copy link to clipboard
Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 4, 2023
Comment
Started with two rounds of CAPTEM. Didn’t work at all. Then did 10 rounds of FOLFIRINOX,...
https://connect.mayoclinic.org/comment/796241/
Copy link to clipboard
Discussion:
What topics do you want for the Neuroendocrine Support Group?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 13, 2023
Comment
Hello, My husband has NETS “insulinoma” also very rare. Pancreas metastasized to liver. He is currently...
https://connect.mayoclinic.org/comment/908363/
Copy link to clipboard
Discussion:
Looking for information on CAPTEM treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 6, 2023
Comment
Are you having the surgery at the same hospital that misdiagnosed? Surgery is always the best...
https://connect.mayoclinic.org/comment/932587/
Copy link to clipboard
Discussion:
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 19, 2023
Comment
Dear stevestenberg31, I have NET in pancreas( debulked) with liver metastases. Had 2 Lan injections with...
https://connect.mayoclinic.org/comment/846399/
Copy link to clipboard
Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 20, 2023
First
Previous
...
61
62
63
64
65
66
67
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect