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Discussions (191)
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Comment
I have continually gotten my lanreotide and have MRIs with contrast on a regular basis for...
https://connect.mayoclinic.org/comment/1169863/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 8, 2024
Comment
I would appreciate the name of your Atlanta dr. I am recently diagnosed w metastatic neuroendocrine...
https://connect.mayoclinic.org/comment/1145370/
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Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 22, 2024
Comment
Thank you I did LACNETS a few weeks ago they were all a wealth of knowledge...
https://connect.mayoclinic.org/comment/1143715/
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Discussion:
PRRT side effects and results
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 18, 2024
Comment
Thank you! I'm actually doing good with the octreotide( bi-weekly shots) and hopefully scheduled scans in...
https://connect.mayoclinic.org/comment/1000147/
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Discussion:
PNET on tail of pancreas with numerous bilobar hepatic metastases
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 19, 2024
Comment
My problem at first was low sugar levels, as the tumors on my liver got bigger...
https://connect.mayoclinic.org/comment/868557/
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Discussion:
Life expectancy with NETs and lifetyle as it progresses
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 29, 2023
Comment
Hello @kate777 I'd like to join @colleenyoung and @char1962, in welcoming you to Connect. I've had...
https://connect.mayoclinic.org/comment/777407/
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Discussion:
Merkel cell-radiation effective on chest-new 2 cm spot on liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 25, 2022
Comment
Hey Frogsong, They hadn’t heard back from the specialist yet, so they decided not to do...
https://connect.mayoclinic.org/comment/847612/
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Discussion:
Has anyone chosen the Watch and Wait and regretted that choice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 22, 2023
Comment
Big hugs to you. I’m glad you are feeling better and have had some positive outcomes...
https://connect.mayoclinic.org/comment/846916/
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Discussion:
Who has had Distal Pancreatectomy and regretted it?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 21, 2023
Comment
I too have Gastrinomas had a perforated esophagus had major surgery to repair it. They discovered...
https://connect.mayoclinic.org/comment/1286959/
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Discussion:
Gastrinomas and Whipple procedure
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 21 4:23pm
Comment
I am awaiting consultation with doctors at Cleveland Clinic. Medicare does pay because it is FDA...
https://connect.mayoclinic.org/comment/1180658/
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Discussion:
Has anyone out there tried Histotripsy for tumors in the liver?
Support Group:
Liver Cancer
Posted: Nov 27, 2024
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