Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,626 total results

Comment

Has anyone tried Histotripsy? My husband has Cholangiocarcinoma and has done well with chemo and now...

https://connect.mayoclinic.org/comment/1149765/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Sep 30 11:28am

Comment

Hi Ken, I had a 5 cm PNET removed in March 2023. So, a year and...

https://connect.mayoclinic.org/comment/1083388/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9 7:51am

Comment

Hi Stevestenberg31 Your detail was very helpful and I am at a crossroads right now. I...

https://connect.mayoclinic.org/comment/919701/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 27, 2023

Comment

Re: "come say hi". Hi, I am new here. I had an appendiceal NET removed in...

https://connect.mayoclinic.org/comment/800545/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2023

Comment

Hi Lenora, I am the leader of The Wisconsin Neuroendocrine Cancer Connection, a group of 163...

https://connect.mayoclinic.org/comment/668825/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2022

Comment

Hi Joy (good positive name) I believe your primary source is in your sm. intestine (same...

https://connect.mayoclinic.org/comment/953010/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Comment

My two liver lesions have been on my liver for years. I have one on my...

https://connect.mayoclinic.org/comment/1111587/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25 10:34am

Comment

@astaingegerdm thank you. My CBC count is starting to show stress on my liver and pancreas...

https://connect.mayoclinic.org/comment/680634/

Discussion: Possible Mircoandenoma muscle wasting

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2022

Comment

At present we are trying to calm down the Carcinoid liver cancer by doing a 20...

https://connect.mayoclinic.org/comment/160175/

Discussion: Carcinoid Cancer of the Liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 24, 2017

Comment

Outlaw, my wife has almost the same area of pancreas with NET’s mass diagnosed last April....

https://connect.mayoclinic.org/comment/783580/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2022

Cancer: Managing Symptoms

Follow

3705

9 minutes ago

Follow

5517

23 minutes ago

Digestive Health

Follow

12633

25 minutes ago

Pancreatic Cancer

Follow

2237

58 minutes ago

Follow

6939

1 hour ago