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Discussions (69)
Comments (705)
Comment
Hi! I'm from Iowa. Have NETS in my lungs
https://connect.mayoclinic.org/comment/1169154/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 6, 2024
Comment
I would strongly request a PET. I've had one recently to see if my dipnech tumours...
https://connect.mayoclinic.org/comment/1142721/
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Discussion:
Neuroendocrine cells in Breast and Lungs DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 16, 2024
Comment
My tumors are not in my lungs but in response to the flushing, I experienced flushing...
https://connect.mayoclinic.org/comment/1107435/
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Discussion:
Sarcoidosis and Lung NET, upcoming surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 18, 2024
Comment
EmilyFaith, l can hear your fear in your words. My question is do you have a...
https://connect.mayoclinic.org/comment/1062216/
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Discussion:
Describe your recovery from lung NET surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 4, 2024
Comment
Hi , I am 72 . I was diagnosed with Carcinoid tumors all over my lungs....
https://connect.mayoclinic.org/comment/1061171/
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Discussion:
Describe your recovery from lung NET surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 3, 2024
Comment
I was recently diagnosed with NETs in my lungs, small ones. I had the all mighty...
https://connect.mayoclinic.org/comment/1054468/
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Discussion:
NET lung with Liver Metastasis (stage 4)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 20, 2024
Comment
After 8 weeks of last PRRT treatment, Ga-68 DOTATATE PET/CT was done on Jan 29, 2024,...
https://connect.mayoclinic.org/comment/1007463/
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Discussion:
4 treatment options from my doctor, which one should I start with?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 31, 2024
Comment
One thing to ask is about the coughing and breathing exercises you must do after surgery....
https://connect.mayoclinic.org/comment/990103/
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Discussion:
Questions I should ask before surgery for Lung NETs?
Support Group:
Lung Cancer
Posted: Jan 2, 2024
Comment
@pamelasantacruz I'm just over 5 years now since diagnosis, chemo, radiation, and two surgeries (lumpectomy for...
https://connect.mayoclinic.org/comment/968340/
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Discussion:
Anyone have neuroendocrine tumor (NETs) of the breast?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 20, 2023
Comment
Tom, that’s frustrating about your incidental findings too. I hope both conditions were successfully treated. I...
https://connect.mayoclinic.org/comment/958681/
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Discussion:
Anyone have a small pancreatic IPMN cyst that turned out to be cancer?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 3, 2023
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