Neuroendocrine Tumors (NETs) Support Group

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Comment

I was diagnosed with stage 4 NET’s December 2022, started in small intestines and metastasized to...

https://connect.mayoclinic.org/comment/901156/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

Comment

@helloitsme , Hi! I have pancreaticNET with liver metastases, I am on Lanreotide after surgery for...

https://connect.mayoclinic.org/comment/938587/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2023

Comment

Update- surgery on Feb.1st went well. My tumor was humongous - 1.8 kg! Succsessfully removed with...

https://connect.mayoclinic.org/comment/813585/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Comment

I am also like you. I am new to this, but my diagnosis is worse in...

https://connect.mayoclinic.org/comment/776777/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2022

Comment

3 weeks ago I had a MRI and it found a tumour on the tail of...

https://connect.mayoclinic.org/comment/692355/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2022

Comment

I have a well differentiated metastatic liver tumor removed two years ago. I was getting lanreotide...

https://connect.mayoclinic.org/comment/932576/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

Comment

I think we are all given a variety of answers depending on? (not sure what), but...

https://connect.mayoclinic.org/comment/952689/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

Comment

Welcome, @clintwlively. I've added your discussion to the Neuroendocrine Tumors (NETs) Support Group as well -...

https://connect.mayoclinic.org/comment/981815/

Discussion: Stage four high-grade neuroendocrine carcinoma

Support Group: Lung Cancer

Posted: Dec 16, 2023

Comment

I also have metastatic liver both sides Also now in my spine L1 and T10 and...

https://connect.mayoclinic.org/comment/978450/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2023

Comment

Me wife had a similar diagnosis. We did the CAP/TEM, surgery of removal of tail of...

https://connect.mayoclinic.org/comment/1105048/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 13 2:12pm

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