Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,247 total results

Comment

@lully2505 , how might we help guide you through tour upcoming surgery. My wife had a...

https://connect.mayoclinic.org/comment/938747/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2023

Comment

I’m new to this world of Oncology as well. My dx NET tumor with metastasized to...

https://connect.mayoclinic.org/comment/774811/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2022

Comment

Hi. I too am on a watch and wait recommendation and am very uncomfortable with that....

https://connect.mayoclinic.org/comment/848478/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2023

Comment

@lastround your diagnosis seems so similar to my dads story in the sense of areas affected...

https://connect.mayoclinic.org/comment/834179/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Comment

I also have tumor metastases on my spine and ribs, unknown primary. Diagnosed Jan 2020, multiple...

https://connect.mayoclinic.org/comment/810800/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

Comment

Welcome @sueannsellers. I'm glad to hear that you are being referred to Mayo Clinic for consultation...

https://connect.mayoclinic.org/comment/806557/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2023

Comment

Just checking in and saying hello before the support group meeting tomorrow. I am new to...

https://connect.mayoclinic.org/comment/713387/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 1, 2022

Comment

Hi mbg20, My husband has recently had a small bowel resection on Feb 27. He originally...

https://connect.mayoclinic.org/comment/830442/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Comment

Sometimes it works to stabilize tumor growth sometimes it doesn’t! I too have pancreatic primary metatastic...

https://connect.mayoclinic.org/comment/1323715/

Discussion: First scan after 3 months of lanreotidec

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9 12:50pm

Comment

Yes!!! My last PET scan (a few weeks ago) showed ‘no new spread or tumor growth’...

https://connect.mayoclinic.org/comment/1353068/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21 8:58am

Digestive Health

Follow

16365

4 minutes ago

Follow

7148

1 hour ago

Cancer: Managing Symptoms

Follow

4919

1 hour ago

Follow

8883

2 hours ago

Melanoma & Skin Cancer

Follow

568

2 hours ago