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Discussions (73)
Comments (721)
Comment
One thing you mentioned stood out for me. I had a carcinoid tumor removed because it...
https://connect.mayoclinic.org/comment/1382735/
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Discussion:
Stage 4 Carcinoid tumor: What treatments have you had?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 30 12:37pm
Comment
I’d had GI issues for years, never mentioned it to doctors. I was diagnosed Lactose intolerance...
https://connect.mayoclinic.org/comment/303673/
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Discussion:
NETs, Toilet Paper, a rant and a little humor
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 29, 2020
Comment
I had a somewhat similar situation when I was diagnosed with my pancreatic neuroendocrine tumor. In...
https://connect.mayoclinic.org/comment/1351342/
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Discussion:
NET tumor of pancreas (1 cm) diagnosed
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 18 11:06pm
Comment
Thank you its all so new to me all these medical terms😀because I'm in the UK...
https://connect.mayoclinic.org/comment/1330748/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 19 3:39pm
Comment
We been missing in action due to more hospitalizations. We did just get a bit of...
https://connect.mayoclinic.org/comment/1329420/
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Discussion:
Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 17 5:59pm
Comment
Hi I was diagnosed 2023 both lungs ,I have just joined this group as iv felt...
https://connect.mayoclinic.org/comment/1328460/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 16 1:27pm
Comment
In follow up visits I have learned that the veins in my chest are scarred and...
https://connect.mayoclinic.org/comment/1329280/
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Discussion:
Blood Clots, DVT and Neuroendocrine Cancer - Be aware.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 17 2:42pm
Comment
I was diagnosed Jan 2020, grade 3 (ki67 17-29%), well differentiated, unknown primary, mets to liver...
https://connect.mayoclinic.org/comment/1334187/
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Discussion:
Everolimus/ Afinitor experience/side effects
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 24 11:47am
Comment
They are flushing versus hot flashes. Flushing just turns you red, but you do not sweat....
https://connect.mayoclinic.org/comment/1203258/
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Discussion:
What does my dentist need to know about my NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 3 3:07pm
Comment
Hello @rachismarie, I'm glad that you found Mayo Connect. We have a number of members who...
https://connect.mayoclinic.org/comment/1181711/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 29, 2024
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