Neuroendocrine Tumors (NETs) Support Group

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Comment

Thanks for sharing. Mine was better by the end of the week. Blood test were run...

https://connect.mayoclinic.org/comment/1210425/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13 8:27am

Comment

I am also going through the same thing but the tumors are through out (inside) my...

https://connect.mayoclinic.org/comment/1282983/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16 7:05am

Comment

I was diagnosed with Stage 4 midgut NETs in Sept. 2021. I have metastses in the...

https://connect.mayoclinic.org/comment/668464/

Discussion: Liver neuroendocrine tumors: I would like to talk with others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2022

Comment

I don’t know what to say. Mine is an Insulinoma, Pancreas and spread to my Liver....

https://connect.mayoclinic.org/comment/866991/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

Comment

@kc43, the liver is an amazing organ. I'm glad to hear that it has recovered 70%...

https://connect.mayoclinic.org/comment/1013222/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2024

Comment

Hello @jenntx10 and welcome to Mayo Connect. Is it my understanding that you are sharing an...

https://connect.mayoclinic.org/comment/771344/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2022

Comment

I recommend a high quality MRI which is the best modality (although also imperfect) to identify...

https://connect.mayoclinic.org/comment/1315829/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 29 1:11pm

Comment

If you don't mid me asking, What was your grade and stage 11 years ago? My...

https://connect.mayoclinic.org/comment/1285740/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19 11:09pm

Comment

We aren't doctors, but generally NET is slow growing in most cases, and the key is...

https://connect.mayoclinic.org/comment/859028/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

Comment

Hi @mayberries, welcome. I see that you have recently been diagnosed with pancreatic NET and you...

https://connect.mayoclinic.org/comment/804962/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

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