Neuroendocrine Tumors (NETs) Support Group

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Comment

Mark, I was diagnosed with NETs (grade 2/3, inoperable, incurable) in Jan 2020 at Mayo Rochester....

https://connect.mayoclinic.org/comment/807712/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

Comment

new here. was just diagnosed with LiverNET. My symptoms were fatigue and diarrhea. Had an ultrasound,...

https://connect.mayoclinic.org/comment/796012/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13, 2023

Comment

@ajnaudra There is one support group in Michigan - not close by - but in Grand...

https://connect.mayoclinic.org/comment/184518/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2018

Comment

@padovani- Welcome to Mayo Connect! I'm sure that you feel all of these things and I...

https://connect.mayoclinic.org/comment/232730/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Comment

New to this forum. Had total bowel blockage which was found to have been caused by...

https://connect.mayoclinic.org/comment/894648/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12, 2023

Comment

Thank you so much for the responses! I have been out of pocket and just now...

https://connect.mayoclinic.org/comment/167648/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2017

Comment

I can only offer my experience. I have ankle swelling with my liver met. It is...

https://connect.mayoclinic.org/comment/884247/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Comment

Lyons1234 I just read your post I see you were on Everolimus I am to starting...

https://connect.mayoclinic.org/comment/942782/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

Comment

LACNETS is sponsoring a presentation on 12/09 by An IR who specializes in all noninvasive treatment...

https://connect.mayoclinic.org/comment/974007/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2023

Comment

Hello, I also have a question about Afinitor. Apparently, its better at treating the PIK3 CA...

https://connect.mayoclinic.org/comment/600088/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7, 2021

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