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Discussions (128)
Comments (1,498)
Comment
This is all very new to me. I was just diagnosed in December 2022. I have...
https://connect.mayoclinic.org/comment/804031/
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Discussion:
Neck and face red flushing
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 30, 2023
Comment
I met with my oncologist. The big tumors on my pancreas are about half the size...
https://connect.mayoclinic.org/comment/834133/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 29, 2023
Comment
I was diagnosed with stage 4 pancreatic NETs to liver in 8/22. I will start my...
https://connect.mayoclinic.org/comment/903632/
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Discussion:
Should I want more treatment after pancreatic nets with lymph nodes?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 28, 2023
Comment
I have a 3 cm tumor near the tail of my pancreas, and “too numerous to...
https://connect.mayoclinic.org/comment/1015671/
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Discussion:
Anyone heard about Histotripsy for liver NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 14 11:29am
Comment
Hi, see above on 7/11 from me previously in re: to history. Stage 4 PNET, with...
https://connect.mayoclinic.org/comment/1109828/
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Discussion:
Anyone have side effects after Lanreotide injection?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 22 9:50am
Comment
I had 3 ER visits where there were a variety of inconclusive diagnosis. Not sure if...
https://connect.mayoclinic.org/comment/1173512/
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Discussion:
How many doctors did you see to get to your NETS diagnosis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: 4 days ago
Comment
I'm so sorry for the long pain! I had my drain for about a month. Uncomfortable,...
https://connect.mayoclinic.org/comment/811543/
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Discussion:
Scared - Suspected NET on tail of the pancreas
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 14, 2023
Comment
I’d like support last round suggestions, as my wife also had too many tumors to count...
https://connect.mayoclinic.org/comment/874754/
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Discussion:
Diagnosed with Stage 4 pNET: What should I know?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 8, 2023
Comment
Hi Teresa, I had been having MRI scans every 4-6 months after removal of the primary...
https://connect.mayoclinic.org/comment/801786/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 26, 2023
Comment
Hello @shellster and welcome to Mayo Connect. If you would like to post with other members...
https://connect.mayoclinic.org/comment/953257/
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Discussion:
Learn About NETs and monthly meetings
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 24, 2023
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