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Discussions (191)
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Comment
I had most my pancreas removed as well as spleen and gallbladder in 2020. In 2023...
https://connect.mayoclinic.org/comment/1217431/
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Discussion:
PNET removed 2 years ago: Can it come back at another site?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 20 11:52am
Comment
@jiamgmx24: RE: Histrotripsy Update: Seattle WA Swedish Hospital has a Histrotripsy program with NET Liver patients....
https://connect.mayoclinic.org/comment/1178965/
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Discussion:
Has anyone out there tried Histotripsy for tumors in the liver?
Support Group:
Liver Cancer
Posted: Nov 24, 2024
Comment
My husband has had the insulinoma metastasized to liver since 2022. He also couldn’t do the...
https://connect.mayoclinic.org/comment/1144312/
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Discussion:
Pancreatic NETs: Looking to connect with anyone with insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 20, 2024
Comment
Karen, thank you for sharing that. I was diagnosed in March, 22. I’ve been on Lanreotide...
https://connect.mayoclinic.org/comment/729591/
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Discussion:
PRRT for NETs: Questioning whether I should continue or not
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 22, 2022
Comment
My wife just finished 4 PRRT treatments and are awaiting our PET scan on June 7th,...
https://connect.mayoclinic.org/comment/1048867/
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Discussion:
Questions Regarding Results after PRRT Treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 11, 2024
Comment
Hello @trivia I appreciate you describing Bland Liver Embolization. I had not heard of this procedure...
https://connect.mayoclinic.org/comment/768682/
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Discussion:
NETs: Anyone has Liver debulking for liver metastasis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 2, 2022
Comment
I’m in the same boat. I had no symptoms. It started in my pancreas and spread...
https://connect.mayoclinic.org/comment/811233/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 14, 2023
Comment
Thank you and my best for you as well. At this point my team, I and...
https://connect.mayoclinic.org/comment/1279927/
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Discussion:
Small Intestine Resection
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 12 9:18am
Comment
Just following up. I had the calcium stimulation test on Tuesday. The liver was positive for...
https://connect.mayoclinic.org/comment/843297/
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Discussion:
Recurrence in Liver after Whipple
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 14, 2023
Comment
I am very curious also. I had breast cancer 11 years ago, now I have a...
https://connect.mayoclinic.org/comment/664484/
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Discussion:
I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer
Support Group:
Cancer
Posted: Dec 22, 2021
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