Neuroendocrine Tumors (NETs) Support Group

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@milagro45pr - I was diagnosed with huge PNET. Had surgery on Feb.1. Ended up with removing...

https://connect.mayoclinic.org/comment/810255/

Discussion: NET in body of pancreas: What are my treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

Comment

@colleenyoung I wanted to give an update on my CT scan after 2 PRRT infusions. Three...

https://connect.mayoclinic.org/comment/819167/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Comment

Hi katballoo! I am so glad you will be going to Mayo in Rochester. You couldn’t...

https://connect.mayoclinic.org/comment/814408/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

Comment

Yes i had small bowel surgery 10 days back.. currently m recovering for chemo..i lost 12...

https://connect.mayoclinic.org/comment/786385/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

Comment

@firepowr, sorry to hear that the CT scan revealing more growth in the liver. Glad that...

https://connect.mayoclinic.org/comment/775388/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2022

Comment

Hi, I am assuming that pNET is for Pancreatic cancer? I was told that as we...

https://connect.mayoclinic.org/comment/916665/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2023

Comment

No. No one realized what was going on until I went home 12 days post surgery....

https://connect.mayoclinic.org/comment/674116/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Jan 23, 2022

Comment

I am interested in hearing from anyone who has an insulinoma neuroendocrine tumor. I have been...

https://connect.mayoclinic.org/comment/786468/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 19, 2022

Comment

@patrick031621 - I have similar conditions - surgery to remove huge pancreatic NET, metastastized to liver....

https://connect.mayoclinic.org/comment/856275/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Comment

16 Tumors were discovered on my liver December 2022. Started on Lanreotide for 3 months, switched...

https://connect.mayoclinic.org/comment/1111382/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25 6:17am

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