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2,247 total results
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Discussions (191)
Comments (2,056)
Comment
Hello @tomatlanta, I appreciate you sharing about your wife's journey with a NETs diagnosis. Everyone's journey...
https://connect.mayoclinic.org/comment/877795/
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Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 13, 2023
Comment
I did the watch and wait for a small (1cm) PNET on the head of my...
https://connect.mayoclinic.org/comment/815227/
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Discussion:
Cough ! What could it be?!
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 21, 2023
Comment
Last April he had a ct scan for stomach pain. Was then diagnosed with stage 4...
https://connect.mayoclinic.org/comment/1219890/
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Discussion:
Liver masses found on CT Scan
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 23 3:08pm
Comment
In May of 2024 I had 5 tumors worked on (in my liver) (I was told...
https://connect.mayoclinic.org/comment/1195158/
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Discussion:
I recently learned of histotripsy treatment for metastatic NETs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 22, 2024
Comment
I have metastatic insulinoma. Mets to the liver. PRRT has not been part of my treatment...
https://connect.mayoclinic.org/comment/1087158/
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Discussion:
Pancreatic NETs: Looking to connect with anyone with insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 15, 2024
Comment
@harley4650 Sorry, the links somehow combined so I'll try again: West coast hospitals with histotripsy https://blog.providence.org/blog/revolutionary-procedure-brings-new-hope-to-liver-cancer-patients-at-providence-providence-swedish...
https://connect.mayoclinic.org/comment/1047150/
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Discussion:
Spreading NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 7, 2024
Comment
Hi @lindabees , Thanks for your encouraging story. What did the second doctor do to erase...
https://connect.mayoclinic.org/comment/1003894/
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Discussion:
PNET on tail of pancreas with numerous bilobar hepatic metastases
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 26, 2024
Comment
Hi! I live in Calgary and I have Stage 4 pNET with overwhelming liver mets. My...
https://connect.mayoclinic.org/comment/1204588/
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Discussion:
Neuroendocrine Carcinoma with Liver Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 5 12:42pm
Comment
This is the protocol. Do the chemo meds (captem) so it shrinks the tumor then to...
https://connect.mayoclinic.org/comment/1321086/
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Discussion:
PNET in Tail of Pancreas, Portal and Splenic Veins
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 5 6:30pm
Comment
I was on CAPTEM for 13 cycles. My pnet and largest liver lesion shrunk in half....
https://connect.mayoclinic.org/comment/1358810/
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Discussion:
Neuroendocrine tumor pancreatic tail
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 28 8:02pm
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