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Discussions (69)
Comments (705)
Comment
What I did was to do a deep dive into the process. First I set my...
https://connect.mayoclinic.org/comment/1000033/
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Discussion:
Possible NET: Waiting for the endo appointment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 19, 2024
Comment
Thank You Colleen, It was also a zoom meeting, so that didn't help......we live 4 and...
https://connect.mayoclinic.org/comment/671245/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 15, 2022
Comment
So sorry to hear about all your issues. I have DIPNECH also, dx’d after my RML...
https://connect.mayoclinic.org/comment/1222859/
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Discussion:
Already on oxygen - diagnosed with DIPNECH: What happens next?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 27 8:50am
Comment
Hi tatteesmom3, are you seeing a NETS (neuroendocrine tumor) multidisiciplinary team or just a local oncologist...
https://connect.mayoclinic.org/comment/844936/
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Discussion:
What do I need to know about NETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 18, 2023
Comment
I, too, have high grade (2/3) metastatic NETs—liver, pancreas, lungs, bone, adrenal gland, parotid gland. I...
https://connect.mayoclinic.org/comment/811356/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 14, 2023
Comment
Hello! Very naive here about where I have been and how concerned I should be. Maybe...
https://connect.mayoclinic.org/comment/758149/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 6, 2022
Comment
Thank you for your very swift reply and advice it is really confidence boosting to know...
https://connect.mayoclinic.org/comment/264632/
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Discussion:
Help: What is a cancer symptom or not? Who to see?
Support Group:
Cancer: Managing Symptoms
Posted: Jun 5, 2019
Comment
I have LiverNET and receive a CT and PET scan every 90 days. Here is some...
https://connect.mayoclinic.org/comment/1218736/
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Discussion:
MRI or CatScan as follow up imaging for metastatic liver tumor?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 22 8:27am
Comment
@monroeed- Good morning and welcome to Mayo Clinic Connect. It sounds like your boyfriend is doing...
https://connect.mayoclinic.org/comment/284790/
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Discussion:
I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer
Support Group:
Cancer
Posted: Dec 23, 2019
Comment
Hi, I was in middle of this and my msg just disappeared..lol but anyway, no my...
https://connect.mayoclinic.org/comment/1296038/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 3 8:08pm
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