Neuroendocrine Tumors (NETs) Support Group

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Hi @kim2022 I see this post is from November of last year. Hope all is going...

https://connect.mayoclinic.org/comment/807987/

Discussion: Stage 4, High-Grade Neuroendocrine carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2023

Comment

JULY 22 I was diagnosed with uterine cancer adenocarcinoma and had a hysterectomy, no node or...

https://connect.mayoclinic.org/comment/1076685/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

Comment

Has anyone had a combo of NETS...then a strange b!old starting low, low Iron, infusions, brought...

https://connect.mayoclinic.org/comment/1031321/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2024

Comment

Hello I have a couple of NETs tumors. One in the lung one in the mediastinum....

https://connect.mayoclinic.org/comment/1198328/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Comment

Hi, thank you! Yes, I do intend to address all my side effect issues with the...

https://connect.mayoclinic.org/comment/1103497/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2024

Comment

Hi @dipnech67 I would be happy to speak with you. I just sent you a private...

https://connect.mayoclinic.org/comment/1055386/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2024

Comment

Hi Rose830, I had to look up Merkel Cell Cancinoma as I'm not familiar with it....

https://connect.mayoclinic.org/comment/844303/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2023

Comment

Hi @ce1b I take Octreotide (similar to lanreotide) injections every 4 weeks for my lung NETs....

https://connect.mayoclinic.org/comment/896824/

Discussion: How long do I wait between injections and PET scans.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2023

Comment

My suggestions are very similar to the other comments. One thing I did to help was...

https://connect.mayoclinic.org/comment/990161/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 2, 2024

Comment

Hello, my Mom is currently on a clinical trial involving a cancer peptide vaccine and nivo...

https://connect.mayoclinic.org/comment/873518/

Discussion: Immunotherapy (Ipilimumab & Nivolumab) for NETs: Any experiences?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2023

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