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Discussions (73)
Comments (721)
Comment
I have a Lung NET that has spread to one of my lymph nodes. Was told...
https://connect.mayoclinic.org/comment/861198/
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Discussion:
Net unknown cause of breathing problems
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 17, 2023
Comment
Hello @hopeful33250 I have no problem in sharing my experiences at all. I was initially experiencing...
https://connect.mayoclinic.org/comment/917370/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 22, 2023
Comment
@gmapam Your NETs oncology team should be able to tell you. You need to have somatostatin...
https://connect.mayoclinic.org/comment/912394/
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Discussion:
How do I know somatostatin is in my system?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 13, 2023
Comment
Hello, In May '22, after surgery to remove a tumor in my right lung and a...
https://connect.mayoclinic.org/comment/823582/
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Discussion:
Stage 4 Carcinoid tumor: What treatments have you had?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 9, 2023
Comment
My situation sounds a little similar in that they marked my tumor from a CT scan...
https://connect.mayoclinic.org/comment/944168/
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Discussion:
NETs: Scheduled for small intestine resection: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 8, 2023
Comment
I wrote you a very long detailed reply to help you and some how it got...
https://connect.mayoclinic.org/comment/911496/
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Discussion:
Has anyone had NETs metastasized to heart?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 11, 2023
Comment
Hi @helloitsme, your reaction to finding out you have NETs is normal. Even though NETs is...
https://connect.mayoclinic.org/comment/851198/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 29, 2023
Comment
@azkidney57 - Good afternoon. You are so lucky to be cancer free right now! Scanxiety is...
https://connect.mayoclinic.org/comment/233070/
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Discussion:
Facing Cancer Recurrence, PTSD & Acknowledging Mental Health
Support Group:
Cancer: Managing Symptoms
Posted: Sep 19, 2019
Comment
Banner Health Patient: JAN COMPUTED TOMOGRAPHY Report: Noncalcified pulmonary nodules some of which is detailed below....
https://connect.mayoclinic.org/comment/1221647/
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Discussion:
Already on oxygen - diagnosed with DIPNECH: What happens next?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 25 5:25pm
Comment
Hello @paula7 and welcome to Mayo Clinic Connect. Most folks with a diagnosis of neuroendocrine (NET)...
https://connect.mayoclinic.org/comment/828882/
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Discussion:
Anyone else got neuroendocrine cervical cancer?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 20, 2023
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