Neuroendocrine Tumors (NETs) Support Group

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Welcome, @amani79. Glad you joined us here. I am a moderator on this site, but on...

https://connect.mayoclinic.org/comment/163138/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 10, 2017

Comment

@k8lyn23 i was diagnosed on 1/5/23 via a biopsy with approx 25 cancerous lesions on my...

https://connect.mayoclinic.org/comment/812349/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Comment

Today I had a visit with my oncologist after the surgery. Original huge tumor of the...

https://connect.mayoclinic.org/comment/823714/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2023

Comment

Hi. I also have NET starting in the lung. It has spread to liver and lymph...

https://connect.mayoclinic.org/comment/835071/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

Comment

Thank you for your reply. Where is Dr Lui located? So you received three opinions and...

https://connect.mayoclinic.org/comment/1145815/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22 8:18pm

Comment

Good morning, My NET is Pancreas to Liver also to numerous to operate, some were over...

https://connect.mayoclinic.org/comment/913398/

Discussion: Anyone with an insulinoma have only therapies instead of surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

Comment

My husband has neuroendocrine pancreatic cancer stage four in liver as well. He's been having trouble...

https://connect.mayoclinic.org/comment/796605/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2023

Comment

Hi Lenora, my husband has been diagnosed with Neuroendocrine cancer and we knew nothing about it?...

https://connect.mayoclinic.org/comment/669455/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2022

Comment

Hi Adding a five day SBRT radiation starting next week to hit one lesion in my...

https://connect.mayoclinic.org/comment/1025698/

Discussion: My husband has had his second PRRT and is doing well!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1 6:57pm

Comment

I get tested for Chromogranin every 4 weeks. My last result was around 1000. It had...

https://connect.mayoclinic.org/comment/793083/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2023

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