Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello @perryleeoneal and welcome to the NETs support group on Mayo Connect. I appreciate you sharing...

https://connect.mayoclinic.org/comment/1312862/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 7:24pm

Comment

Hoping all is going well for you. My husband is in the middle of his 4th...

https://connect.mayoclinic.org/comment/942780/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

Comment

@michellesimpson10 My wife received a diagnosis of mass of pancreas near tail of pancreas, and too...

https://connect.mayoclinic.org/comment/845638/

Discussion: New diagnosis of NET: What should I know and do to plan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2023

Comment

I know this is a bit of an older thread, but for those who had metastasis...

https://connect.mayoclinic.org/comment/842575/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 13, 2023

Comment

Can’t say enough about the CAP/TEM chemo option. For my wife it resulted in approximately a...

https://connect.mayoclinic.org/comment/1255694/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11 3:24pm

Comment

@tomrennie, how are you doing? Your case is similar to my wife’s. Our team is recommending...

https://connect.mayoclinic.org/comment/1038369/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2024

Comment

It’s really hard to say the right things! I can tell you the diagnosis is a...

https://connect.mayoclinic.org/comment/1246314/

Discussion: Grade 3, poorly differentiated duodenal NET metastasized to liver-

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27 5:38am

Comment

Hi, I went for whipple in 2020 as found a PNET Gastrinoma Grade1 Functional. In July...

https://connect.mayoclinic.org/comment/1162931/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 26, 2024

Comment

@kaw627 @hopeful33250 @retiredinkazoo @lindaldotson @dbamos1945 From the e-mail I received from LACNETS: "Join us on Saturday,...

https://connect.mayoclinic.org/comment/972907/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 30, 2023

Comment

Hi, His primary is undetermined. It has metastisized to liver, lymph nodes, mesentery, and the fat...

https://connect.mayoclinic.org/comment/911173/

Discussion: Has anyone had NETs metastasized to heart?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2023

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