Neuroendocrine Tumors (NETs) Support Group

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Comment

Linda, Awesome - thank you for sharing. This is good information, and I did find a...

https://connect.mayoclinic.org/comment/1357269/

Discussion: New PNET Question Re: Surgery (I'm in bit of a pickle)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26 10:04pm

Comment

I had my 42nd lanreotide injection recently I’ve only had lethargy for a few days or...

https://connect.mayoclinic.org/comment/1196625/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2024

Comment

My husband takes Creon for his diarrhea even though his tumors are mostly in his liver....

https://connect.mayoclinic.org/comment/1325333/

Discussion: Lanreotide side effects: diarrhea constipation, what to do?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12 12:16am

Comment

Hello @kim1965 I'm glad that you were able to read the experience of @outlawcancer in order...

https://connect.mayoclinic.org/comment/817613/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2023

Comment

Thanks for your comment. I have since learned that non functioning (no symptom) tumors do not...

https://connect.mayoclinic.org/comment/1166857/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2024

Comment

I've had MRI'S and CT scans (5) with contrasting. Had my latest Friday my 12th chemo...

https://connect.mayoclinic.org/comment/807241/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

Comment

Stay positive! My husbands liver tumors have been as big as 9 cm ..up and down...

https://connect.mayoclinic.org/comment/1029025/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7, 2024

Comment

TY. Interesting my oncologist didn't comment on replacing my liver as I have a similar situation...

https://connect.mayoclinic.org/comment/952673/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

Comment

Kaw627: It seems your NET experience is very similar to mine. I am very interested in...

https://connect.mayoclinic.org/comment/948956/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17, 2023

Comment

I’m stage IV grade 2. Neuroendocrine, Primary in small intestine, metastatic to liver and other areas....

https://connect.mayoclinic.org/comment/812339/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

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