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623 total results
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Discussions (53)
Comments (570)
Comment
Teresa, Carcinoid has been one of the many things I have thought about. I have had...
https://connect.mayoclinic.org/comment/186235/
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Discussion:
Multiple abnormal hormone levels - Could it be autoimmune related?
Support Group:
Autoimmune Diseases
Posted: Feb 24, 2018
Comment
Looking back, I had symptoms of severe diarrhea 5 years before diagnosis. Nightime diarrhea including incontinence....
https://connect.mayoclinic.org/comment/1202313/
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Discussion:
Anyone have a neuroendocrine tumor (NET) in the spine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 2 9:52am
Comment
I feel great! The anti nausea meds they gave me during the treatment worked great, no...
https://connect.mayoclinic.org/comment/1189177/
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Discussion:
Has anyone out there tried Histotripsy for tumors in the liver?
Support Group:
Liver Cancer
Posted: Dec 12, 2024
Comment
I’ve been taking Ocreotide for 18 months, I get 2 shots every 28 days, outside of...
https://connect.mayoclinic.org/comment/1176313/
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Discussion:
Ocreotide side effects: Anyone have dizzy spells?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 19, 2024
Comment
My first MRI was Dec 2022 when I was diagnosed. PET Scan was January 2023 to...
https://connect.mayoclinic.org/comment/1165530/
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Discussion:
NET on liver: Question about treatments when no symptoms
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 30, 2024
Comment
I would definitely see a NET specialist, I have carcinoid syndrome , NET’s started in my...
https://connect.mayoclinic.org/comment/1294461/
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Discussion:
What should I do? Carcinoid symptoms but no answers.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 1 4:19pm
Comment
Hi My husband has a similar situation. He was diagnosed last March with a grade 1,...
https://connect.mayoclinic.org/comment/1216829/
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Discussion:
I am one year out with my diagnosis just finished 4th round of PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 19 5:32pm
Comment
I’ve been on Ocreotide for over 2 years, approx 16 tumors on my Liver. There has...
https://connect.mayoclinic.org/comment/1274535/
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Discussion:
Tumor growth in three month follow up MRI
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 5 4:55am
Comment
Hello, I was diagnosed about 2 1/2 years ago, primary tumor was identified in the small...
https://connect.mayoclinic.org/comment/1317375/
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Discussion:
Neuroendocrine Carcinoma with Liver Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 31 2:20pm
Comment
Been taking Ocreotide for about 18 months 2 shots every 28 days.. stage 4 metastasized to...
https://connect.mayoclinic.org/comment/1196525/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 24, 2024
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