Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello @mukul123 and welcome to Mayo Connect. I see that you are looking for direction for...

https://connect.mayoclinic.org/comment/786179/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

Comment

It’s so hard to generalize one experience to others except as an example. In 2014-15, I...

https://connect.mayoclinic.org/comment/1001387/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21 5:03pm

Comment

Hang in there! I am having my 7th Lan injection tomorrow. Had distal pancreatectomy with spleen,...

https://connect.mayoclinic.org/comment/935344/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2023

Comment

I was in for a healthy heart check and the ultrasound showed liver spots. Didn’t really...

https://connect.mayoclinic.org/comment/729640/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2022

Comment

I was diagnosed with net cancer December 2020. Originated in small intestines and spread to liver....

https://connect.mayoclinic.org/comment/856717/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Comment

full of gas i have net of small bowel tumor was removed 5/22, i have 3...

https://connect.mayoclinic.org/comment/789668/

Discussion: What helps with gas and pain after surgery?

Support Group: Cancer: Managing Symptoms

Posted: Dec 28, 2022

Comment

Hello @dak10, I so appreciate hearing from you again with some more information on your journey...

https://connect.mayoclinic.org/comment/827367/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Comment

I also have NET pancreas to liver and type 2 diabetes. I am taking CAPTEM. I...

https://connect.mayoclinic.org/comment/836209/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2023

Comment

When is your surgery? Or have you already had your surgery? If so, how did it...

https://connect.mayoclinic.org/comment/1122974/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13 2:13pm

Comment

I had a small bowel resection in 2007 because my carcinoid tumor had grown around several...

https://connect.mayoclinic.org/comment/874036/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2023

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