Neuroendocrine Tumors (NETs) Support Group

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Comment

Welcome @kate777, I can imagine that your terrified that Merkel cell may have spread. Spots on...

https://connect.mayoclinic.org/comment/777248/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 25, 2022

Comment

Hello Tom, @tomewilson Here are links to articles that I found about PRRT and radioembolization, https://link.springer.com/article/10.1007/s13139-014-0292-2...

https://connect.mayoclinic.org/comment/179460/

Discussion: Does Y-90 preclude PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 1, 2018

Comment

I am 69 years old and am diagnosed with multiple liver metastasis from lung carcinoid tumor....

https://connect.mayoclinic.org/comment/825019/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12, 2023

Comment

Maybe ask you doctor about everolimus. It seemed to help my husband but was at same...

https://connect.mayoclinic.org/comment/837879/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5, 2023

Comment

@mollie59 Mollie, I'm so glad to get your report and to know how much progress you...

https://connect.mayoclinic.org/comment/182059/

Discussion: Mayo Presentation at the Northwoods NETs group - 1/14/18

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2018

Comment

My Chromogranin A was 1507 last year and the PET was negative. In February I was...

https://connect.mayoclinic.org/comment/880883/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2023

Comment

At the initial CT scan she had 10 hypodense lesions on her liver one measured 3.5...

https://connect.mayoclinic.org/comment/881571/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

Comment

2 weeks after blan embolization of my liver left side severe pain in my left side...

https://connect.mayoclinic.org/comment/887516/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2023

Comment

Living in Texas, MD Anderson is a great facility. I live in tulsa Oklahoma. I've also...

https://connect.mayoclinic.org/comment/933185/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

Comment

I know I still have lesions on my liver, not sure on pancreas. For me it...

https://connect.mayoclinic.org/comment/836863/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3, 2023

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