Neuroendocrine Tumors (NETs) Support Group

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Comment

I was a full time municipal firefighter/Paramedic & Engineer ~ What I believe was the biggest...

https://connect.mayoclinic.org/comment/951122/

Discussion: Calling all Firefighters: The National Firefighter Registry for Cancer

Support Group: Cancer

Posted: Oct 20, 2023

Comment

Hi. I was very lucky. I didn’t have to have chemo or radiation. I just had...

https://connect.mayoclinic.org/comment/1046358/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2024

Comment

dpepsi247 - Good morning. I am so sorry to hear that your doctor was short with...

https://connect.mayoclinic.org/comment/816939/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

Comment

Hi @andy2020 You have really had a difficult time getting a diagnosis. I can understand how...

https://connect.mayoclinic.org/comment/810693/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

Comment

Your outcomes are so fantastic! Bless your heart, you have so much courage. If you don't...

https://connect.mayoclinic.org/comment/1252623/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7 1:52pm

Comment

My sister returned to hospital on Tuesday with severe chest pain . They were afraid of...

https://connect.mayoclinic.org/comment/1021153/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 23, 2024

Comment

Thanks for asking, no, nothing new except maybe a bit overwhelmed. He had surgery last week....

https://connect.mayoclinic.org/comment/284809/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Jan 14, 2020

Comment

My primary was a tumor wrapped around my small intestine, discovered in 2007. I have been...

https://connect.mayoclinic.org/comment/898391/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2023

Comment

Hi @nana120 I believe your hair loss will stabilize. My hair has really thinned due to...

https://connect.mayoclinic.org/comment/1008942/

Discussion: Anyone have hair loss with lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 3, 2024

Comment

Hello @tonyhasumners and welcome to the NETs discussion group on Mayo Connect. I moved your message...

https://connect.mayoclinic.org/comment/804469/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

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