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794 total results
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Discussions (73)
Comments (721)
Comment
@nana120 I wasn't told of any dietary restrictions when I started my octreotide injections, but maybe...
https://connect.mayoclinic.org/comment/937831/
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Discussion:
Updating about My Lanreotide Injections & CT Scan
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 28, 2023
Comment
Hi Mike @mikecincy Sorry to hear you've joined the NETs club. It looks like you're doing...
https://connect.mayoclinic.org/comment/885633/
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Discussion:
NET found by colonoscopy. What to expect and how should I approach
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 26, 2023
Comment
@annie12345 That’s hard when cost becomes the driver. Yes, I’m lucky I’ve always had great insurance...
https://connect.mayoclinic.org/comment/1330889/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 19 8:59pm
Comment
Thanks for the reminder to fill you in. I did ask my IR who did my...
https://connect.mayoclinic.org/comment/957412/
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Discussion:
Anyone heard about Histotripsy for liver NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 1, 2023
Comment
Hi I was diagnosed a year ago with NET. It showed up with multiple lesions in...
https://connect.mayoclinic.org/comment/854586/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 4, 2023
Comment
Sakota- Here is a link to a great explanation to your question. It also show a...
https://connect.mayoclinic.org/comment/232792/
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Discussion:
Facing Cancer Recurrence, PTSD & Acknowledging Mental Health
Support Group:
Cancer: Managing Symptoms
Posted: Dec 14, 2018
Comment
Hello, I have a stage 3 lung NET. I found a lot of good information on...
https://connect.mayoclinic.org/comment/998253/
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Discussion:
Statistics on progression free survival while on SSA / Lanreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 16, 2024
Comment
While my tumors have been located and biopsies and I’m on my seventh injection of Lanreotide...
https://connect.mayoclinic.org/comment/933719/
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Discussion:
Carcinoid syndrome; NET not found
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 21, 2023
Comment
@gprior Hi Gloria. Sorry you have a tumor by your heart and need more surgery. No,...
https://connect.mayoclinic.org/comment/1142729/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 16, 2024
Comment
mir123 I was advised by thesecondopinion.org to be treated for my NET of the breast with...
https://connect.mayoclinic.org/comment/945761/
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Discussion:
Neuroendocrine cells in Breast and Lungs DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 11, 2023
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