Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Neuroendocrine Tumors (NETs) Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
2,247 total results
All
Discussions (191)
Comments (2,056)
Comment
Yes, I had the swollen feet and joints before I started Lanreotide shots every month. I...
https://connect.mayoclinic.org/comment/1197423/
Copy link to clipboard
Discussion:
Living with Neuroendocrine NETS, any advice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 26, 2024
Comment
My sisters has now spread to the peritoneam (lining of the abdomen), and pelvic area. She...
https://connect.mayoclinic.org/comment/1100726/
Copy link to clipboard
Discussion:
Anyone have side effects after Lanreotide injection?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 7, 2024
Comment
Hello, my NET is metastasized to my liver from my lung diagnosis in Dec 2022. My...
https://connect.mayoclinic.org/comment/1349514/
Copy link to clipboard
Discussion:
Carcinoid cancer: Want to meet others
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 16 10:37am
Comment
I did not tolerate well the milk shakes, probably due to milk, but also cacao is...
https://connect.mayoclinic.org/comment/919089/
Copy link to clipboard
Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 26, 2023
Comment
https://connect.mayoclinic.org/discussion/is-there-a-particular-diet-to-have-when-beginning-lanreotide-injection/Reading what others have said confirms that as NET patients we are all different. I was...
https://connect.mayoclinic.org/comment/1252413/
Copy link to clipboard
Discussion:
Is there a particular diet to have when starting Lanreotide injection?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 7 9:30am
Comment
I hope you are doing well and have no recurrence of NETs! Do you mind sharing...
https://connect.mayoclinic.org/comment/1239322/
Copy link to clipboard
Discussion:
I recently had surgery to remove NET in small intestine
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 17 3:19pm
Comment
Thank you! I had my first CT scan after surgery and 3 Lan injections. No tumour...
https://connect.mayoclinic.org/comment/876264/
Copy link to clipboard
Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 10, 2023
Comment
Thank you for sharing. This is very good, helpful information. Im in Oklahoma, and have found...
https://connect.mayoclinic.org/comment/872994/
Copy link to clipboard
Discussion:
Pheochromocytoma: Anyone being treated for an adrenal mass?
Support Group:
Diabetes & Endocrine System
Posted: Jun 5, 2023
Comment
What a situation There is a transplant team in New York st Mount Sinai Hospital it...
https://connect.mayoclinic.org/comment/1328862/
Copy link to clipboard
Discussion:
Liver transplant and Neuroendocrine Carcinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 17 6:22am
Comment
So I am also grade 2 stage 4 ki-67 7% metatasic to both sides of the...
https://connect.mayoclinic.org/comment/978339/
Copy link to clipboard
Discussion:
After liver embolization: Looking for the best diet + food suggestions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 11, 2023
First
Previous
...
48
49
50
51
52
53
54
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect