Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Neuroendocrine Tumors (NETs) Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
1,626 total results
All
Discussions (128)
Comments (1,498)
Comment
I was diagnosed 17 months ago with a metastatic stage 4, grade 2-3 small intestinal NET....
https://connect.mayoclinic.org/comment/1165976/
Copy link to clipboard
Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 1 12:09am
Comment
Doctor was very dismissive. Had thyroid out due to covered with nodules 10 years ago. Also...
https://connect.mayoclinic.org/comment/905728/
Copy link to clipboard
Discussion:
High or Fluctuating Chromogranin A Level: What does it mean?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 1, 2023
Comment
I was told surgery was not an option and I did not press for further explanation,...
https://connect.mayoclinic.org/comment/1000130/
Copy link to clipboard
Discussion:
PNET on tail of pancreas with numerous bilobar hepatic metastases
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 19 1:03pm
Comment
I have heard of cases in excess of 20 years on SSA. I Believe Lano is...
https://connect.mayoclinic.org/comment/1011808/
Copy link to clipboard
Discussion:
Statistics on progression free survival while on SSA / Lanreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 8 9:34am
Comment
@cewald62, my wife has NET in the liver still after finding the primary tumor on the...
https://connect.mayoclinic.org/comment/1146827/
Copy link to clipboard
Discussion:
After initial tests/consults at Mayo: When does NETs treatment start?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 24 5:56pm
Comment
Yes, I am. I have Stage Four carcinoid cancer. The original site was my ileum. It...
https://connect.mayoclinic.org/comment/988900/
Copy link to clipboard
Discussion:
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 30, 2023
Comment
Does the nausea start with the “CAP” portion or only with the “TEM”? His doctor has...
https://connect.mayoclinic.org/comment/884044/
Copy link to clipboard
Discussion:
Looking for information on CAPTEM treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 24, 2023
Comment
Thankyou for asking, he’s doing well now, back to baseline after stopping his sandostatin injections. Just...
https://connect.mayoclinic.org/comment/1067948/
Copy link to clipboard
Discussion:
Updating about My Lanreotide Injections & CT Scan
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 14 4:03pm
Comment
@aliatl I’ll try to keep it short, our diagnosis hopefully will help you some. My wife...
https://connect.mayoclinic.org/comment/823608/
Copy link to clipboard
Discussion:
NET lung with Liver Metastasis (stage 4)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 9, 2023
Comment
I was diagnosed with stage 4 Merkel cell carcinoma in Jan 2022 when I developed a...
https://connect.mayoclinic.org/comment/966112/
Copy link to clipboard
Discussion:
Merkel Cell Carcinoma: I'd like to hear from others
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 16, 2023
First
Previous
...
48
49
50
51
52
53
54
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect