Neuroendocrine Tumors (NETs) Support Group

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Comment

I'm so sorry you're in this club but its great that you're seeking out answers. I...

https://connect.mayoclinic.org/comment/1356211/

Discussion: My journey to here...

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25 1:35pm

Comment

I just completed my last PRRT (Lutathera)treatment in May, I had a scan before my third...

https://connect.mayoclinic.org/comment/1324144/

Discussion: Advice for Preparations and Expectations on starting PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10 9:03am

Comment

Take a deep breath. There are lots of treatments for this cancer. I also have a...

https://connect.mayoclinic.org/comment/1219584/

Discussion: PNETs: What comes first? Surgery or try to shrink tumor with chemo?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23 9:27am

Comment

Definitely identify with the private moments of emotions. My wife is a natural born worrier.. She...

https://connect.mayoclinic.org/comment/1192097/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 17, 2024

Comment

My treatments were different I had 4 and they were 8 weeks apart Except for after...

https://connect.mayoclinic.org/comment/1312828/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 6:40pm

Comment

Thank you My worst side effects are total exhaustion massive headache and diarrhea The more minimal...

https://connect.mayoclinic.org/comment/1313479/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26 3:32pm

Comment

Are you getting monthly injections? I started with Lanreotide, that didn’t help the flushing, I was...

https://connect.mayoclinic.org/comment/1208804/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11 7:25am

Comment

I was diagnosed 2 years ago, with stage 4 ,started in my lower intestines and metastasized...

https://connect.mayoclinic.org/comment/1202170/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 2 7:17am

Comment

Thanks! @hopeful33250 those articles are helpful! I’m a caregiver. My mom was diagnosed with NETs (Primary...

https://connect.mayoclinic.org/comment/311779/

Discussion: Afinitor - Anyone have pneumonitis as a side effect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2020

Comment

I was diagnosed with Grade2 Stage IV metastasized from small intestines to liver. PET scan validated...

https://connect.mayoclinic.org/comment/1162526/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2024

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