Neuroendocrine Tumors (NETs) Support Group

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Comment

I’ve been on Ocreotide for over 2 years, approx 16 tumors on my Liver. There has...

https://connect.mayoclinic.org/comment/1274535/

Discussion: Tumor growth in three month follow up MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5 4:55am

Comment

I am also one of the lucky ones with carcinoid syndrome.. started with Lanreotide which didn’t...

https://connect.mayoclinic.org/comment/1123918/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2024

Comment

I should mind my own business However! I have had 4 different options if there is...

https://connect.mayoclinic.org/comment/1028520/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 6, 2024

Comment

Yes the bloating in my case was from lanreotide and Ocreotide My stomach is perfectly flat...

https://connect.mayoclinic.org/comment/862879/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2023

Comment

Thank you. Yes my last 4th treatment was on the 14th. Several of my labs came...

https://connect.mayoclinic.org/comment/257043/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 15, 2020

Comment

@hopeful33250 Wow - what a great article and information. No, I didn't know about octreotride. I...

https://connect.mayoclinic.org/comment/297055/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2020

Comment

Teresa, Carcinoid has been one of the many things I have thought about. I have had...

https://connect.mayoclinic.org/comment/186235/

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 24, 2018

Comment

Been taking Ocreotide for about 18 months 2 shots every 28 days.. stage 4 metastasized to...

https://connect.mayoclinic.org/comment/1196525/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2024

Comment

I also have Grade 2, KI - 67 of 6.6% Stage 4, metastasized from small intestines...

https://connect.mayoclinic.org/comment/1261758/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 9:25am

Comment

Sophiarose Hope your thanksgiving was good. I’ve been on Ocreotide for 18 months, it does control...

https://connect.mayoclinic.org/comment/1181640/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

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