Neuroendocrine Tumors (NETs) Support Group

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Comment

I had just recovered from my mastectomies and was pulling myself back together when my husband...

https://connect.mayoclinic.org/comment/232724/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Comment

@rww1979, Joe Tippens protocol appears again and again in forums and social media. It is important...

https://connect.mayoclinic.org/comment/1295985/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3 6:27pm

Comment

Thanks for the reminder to fill you in. I did ask my IR who did my...

https://connect.mayoclinic.org/comment/957412/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2023

Comment

Hello, I have a stage 3 lung NET. I found a lot of good information on...

https://connect.mayoclinic.org/comment/998253/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2024

Comment

While my tumors have been located and biopsies and I’m on my seventh injection of Lanreotide...

https://connect.mayoclinic.org/comment/933719/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2023

Comment

Hi I was diagnosed a year ago with NET. It showed up with multiple lesions in...

https://connect.mayoclinic.org/comment/854586/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

Comment

Sakota- Here is a link to a great explanation to your question. It also show a...

https://connect.mayoclinic.org/comment/232792/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 14, 2018

Comment

@gprior Hi Gloria. Sorry you have a tumor by your heart and need more surgery. No,...

https://connect.mayoclinic.org/comment/1142729/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

Comment

mir123 I was advised by thesecondopinion.org to be treated for my NET of the breast with...

https://connect.mayoclinic.org/comment/945761/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 11, 2023

Comment

Yes, they want to do a needle biopsy. They say there slow growing so they want...

https://connect.mayoclinic.org/comment/1169811/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

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