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1,626 total results
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Discussions (128)
Comments (1,498)
Comment
Grade 2. My Whipple went well but Mets to the liver in about a year. PRRT...
https://connect.mayoclinic.org/comment/1060558/
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Discussion:
Questions Regarding Results after PRRT Treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 1 10:49pm
Comment
@Hollywood81: I am anxiously following your case because I am now receiving PRRT Lutathera treatment for...
https://connect.mayoclinic.org/comment/1151563/
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Discussion:
Straight to the liver: Anyone have NETs originating in strange areas?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 4 6:02am
Comment
I was on lanreotide now on octreotide and yesterday my MRI showed my tumors are still...
https://connect.mayoclinic.org/comment/741450/
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Discussion:
Treatments for Carcinoids
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 25, 2022
Comment
I also have Carcinoid Syndrome, PET scan shows it started in the small intestines and metastasized...
https://connect.mayoclinic.org/comment/878862/
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Discussion:
Where can I find a carcinoid syndrome specialist in Florida?!
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 15, 2023
Comment
Hi, I was recently diagnosed with, carcinoid syndrome, the tumors (NET) started in my small intestine...
https://connect.mayoclinic.org/comment/815553/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 22, 2023
Comment
@harley4650 So sorry to hear about the progression. What about the newly approved histotripsy procedure for...
https://connect.mayoclinic.org/comment/1047144/
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Discussion:
Spreading NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 7 10:36pm
Comment
@sophiarose: I am awaiting my 4th PRRT early December 2024. How is your affected arm? What...
https://connect.mayoclinic.org/comment/1161212/
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Discussion:
PRRT side effects and results
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 22 8:30pm
Comment
No meds before Lanreotide. I have had yearly CAT scans. The annual scan this year showed...
https://connect.mayoclinic.org/comment/1171345/
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Discussion:
Experience w/ watch and wait approach for metastatic liver tumor
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 10 4:03pm
Comment
Here is an example as to why a NET specialist is necessary. My husband had an...
https://connect.mayoclinic.org/comment/917235/
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Discussion:
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 22, 2023
Comment
Hopefully there is someone out there still monitoring this. I have chronic NET that started in...
https://connect.mayoclinic.org/comment/1171106/
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Discussion:
Neuroendocrine Carcinoma with Liver Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 10 9:11am
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