Neuroendocrine Tumors (NETs) Support Group

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Comment

Your tracking great with being a strong advocate for your son's health with this diagnosis. Our...

https://connect.mayoclinic.org/comment/1288159/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23 11:07am

Comment

Sorry for the delay in responding. Where are things today? Any changes? I have a pancreatic...

https://connect.mayoclinic.org/comment/1143967/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2024

Comment

I’m 63, no systems at all. NET discovered while getting a hernia repaired in April of...

https://connect.mayoclinic.org/comment/837694/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Comment

Hi,Sorry to hear about your diagnosis. One thing doctors and research haveshown is that most neuroendicrine...

https://connect.mayoclinic.org/comment/90131/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

Comment

Hello @bmkelldog! I completely understand your frustration! Diagnosing and then locating insulinomas, due to their small...

https://connect.mayoclinic.org/comment/1339069/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 1 10:53am

Comment

I have an injection of 125ml Lanreotide every 4 weeks, to stablise my NET in my...

https://connect.mayoclinic.org/comment/1352421/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20 11:54am

Comment

Thank you Colleen. I was told I will have a distal pancreatic surgery and that it...

https://connect.mayoclinic.org/comment/805137/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Comment

I understand your fears. I hope you get to the bottom of what's causing your symptoms....

https://connect.mayoclinic.org/comment/1384222/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1 12:14pm

Comment

I too respect your decision. But I can tell you that my diagnosis was stage IV....

https://connect.mayoclinic.org/comment/942810/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Oct 6, 2023

Comment

I understand how you are feeling, my two youngest were 6 when I was diagnosed with...

https://connect.mayoclinic.org/comment/800359/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

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