Neuroendocrine Tumors (NETs) Support Group

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Comment

Update on my son…. It’s actually a lot but will cut to chase. He had surgery...

https://connect.mayoclinic.org/comment/1409859/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6 3:21pm

Comment

@lns83 Currently still on Ocreotide (2 shots every 28 days) ( I also have carcinoid syndrome...

https://connect.mayoclinic.org/comment/1414321/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: 1 day ago

Comment

I also have stage 4 metastasized from small intestine to the liver. On Ocreotide injections for...

https://connect.mayoclinic.org/comment/1408667/

Discussion: 2nd 3 month follow up

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5 7:53am

Comment

Here is my diet which covers almost every day of the year. Breakfast---a cup of coffee...

https://connect.mayoclinic.org/comment/856388/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Comment

Hi Jlu, first off, wow 10x10cm is a very big tumor. And you have lots going...

https://connect.mayoclinic.org/comment/857723/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2023

Comment

Good morning!!! As I mentioned above, I was diagnosed January 2020, grade 3 (Ki67 17-29 depending...

https://connect.mayoclinic.org/comment/1247365/

Discussion: Anyone have experience with cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28 12:10pm

Comment

Hi. Good to hear from you. I will try to help. What I have done has...

https://connect.mayoclinic.org/comment/776368/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

Comment

After a lot of tests, scans and different doctors over the course of the last year,...

https://connect.mayoclinic.org/comment/912620/

Discussion: Anyone with an insulinoma have only therapies instead of surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 14, 2023

Comment

Yes, I have had a significant increase in fatty liver over the course of a year...

https://connect.mayoclinic.org/comment/1376841/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22 2:31pm

Comment

I also was diagnosed stage 4 primary in the small intestine and spread to the liver...

https://connect.mayoclinic.org/comment/1391349/

Discussion: Neuroendocrine carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11 6:31am

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