Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi I’ve been living with carcinoid tumor now since 2011 when I first learned I had...

https://connect.mayoclinic.org/comment/747582/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 9, 2022

Comment

I was diagnosed type 2 diabetes 2 years ago when I was diagnosed with carcinoid syndrome.....

https://connect.mayoclinic.org/comment/1233965/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10 5:22pm

Comment

I started Lanreotide February 2023, didn’t stop the hot flashes (carcinoid syndrome). Dr switched me to...

https://connect.mayoclinic.org/comment/1289422/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25 8:10am

Comment

I was diagnosed with NET’s starting in small bowel and metastasized to liver, I’ve been on...

https://connect.mayoclinic.org/comment/1283550/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16 6:11pm

Comment

Looking back, I had symptoms of severe diarrhea 5 years before diagnosis. Nightime diarrhea including incontinence....

https://connect.mayoclinic.org/comment/1202313/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 2 9:52am

Comment

I feel great! The anti nausea meds they gave me during the treatment worked great, no...

https://connect.mayoclinic.org/comment/1189177/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Dec 12, 2024

Comment

I’ve been taking Ocreotide for 18 months, I get 2 shots every 28 days, outside of...

https://connect.mayoclinic.org/comment/1176313/

Discussion: Ocreotide side effects: Anyone have dizzy spells?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2024

Comment

My first MRI was Dec 2022 when I was diagnosed. PET Scan was January 2023 to...

https://connect.mayoclinic.org/comment/1165530/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2024

Comment

I would definitely see a NET specialist, I have carcinoid syndrome , NET’s started in my...

https://connect.mayoclinic.org/comment/1294461/

Discussion: What should I do? Carcinoid symptoms but no answers.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1 4:19pm

Comment

Hi My husband has a similar situation. He was diagnosed last March with a grade 1,...

https://connect.mayoclinic.org/comment/1216829/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19 5:32pm

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