Neuroendocrine Tumors (NETs) Support Group

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Comment

I was diagnosed with DIPNECH at National Jewish Health (NJH) 3/23. I've been coughing and being...

https://connect.mayoclinic.org/comment/906680/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 2, 2023

Comment

Hello. I am Angela and I am from NE Iowa. When I was thinking of things...

https://connect.mayoclinic.org/comment/816813/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24, 2023

Comment

@spaztwobe I feel your frustration. It took 12 years to correctly diagnose my lung NETs and...

https://connect.mayoclinic.org/comment/1315349/

Discussion: Diagnosis Difficulties

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 11:06pm

Comment

Am such a newbie at all this I am not sure this si where my post...

https://connect.mayoclinic.org/comment/232955/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jul 7, 2019

Comment

Hi mcohan, I recommend LACNETS.org for tons of info on NETS. It's a support organization, not...

https://connect.mayoclinic.org/comment/844935/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Comment

@cwm1- Good morning. I hope that this finds you on a sunny beach. You are a...

https://connect.mayoclinic.org/comment/232960/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jul 8, 2019

Comment

Hi @rogo It seems like we’ve communicated in the past. I have DIPNECH and lung NETs...

https://connect.mayoclinic.org/comment/1070950/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2024

Comment

Hi thank you for your reply. I am in Australia. What are the side effects you...

https://connect.mayoclinic.org/comment/1205619/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6 9:24pm

Comment

I apologize for not responding earlier. I was waiting to hear maybe where your tumor is....

https://connect.mayoclinic.org/comment/1363339/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4 8:18am

Comment

I had a massive head surgery in 2012 for SCC, and related lung mets in 2014...

https://connect.mayoclinic.org/comment/232771/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 10, 2018

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