Neuroendocrine Tumors (NETs) Support Group

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Hi, your story sounds like mine. I had right middle lobe removed October 2023 due to...

https://connect.mayoclinic.org/comment/1329790/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2025

Comment

Hi @jayace2430 I'm sorry to hear of your wife's diagnosis My husband was diagnosed with pancreatic...

https://connect.mayoclinic.org/comment/1336410/

Discussion: (Spouse)Supports Stage 2

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 27, 2025

Comment

My goodness, I guess I can expect a long road. Before my enteroscopy, I did have...

https://connect.mayoclinic.org/comment/1348247/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2025

Comment

Hello and thank you glad to be back. Not scheduled yet I have an appointment at...

https://connect.mayoclinic.org/comment/1271304/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2025

Comment

Great explanation! I also have both, but not needing treatment at this point. It can be...

https://connect.mayoclinic.org/comment/1411054/

Discussion: DO I need 2 teams if I have both Nets-lung and DIPNECH?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2025

Comment

I was diagnosed last year with a lung tumor and had my left lower lobe of...

https://connect.mayoclinic.org/comment/1314408/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2025

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