Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,455 total results

Comment

Your journey is very similar to mine. I live in Maine, so was only able to...

https://connect.mayoclinic.org/comment/1332659/

Discussion: Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 22, 2025

Comment

Hello, @tatnick02, and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/1197958/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Comment

Hi Teresa, Thank you for your suggestion and information! I live in Midwest. I found U...

https://connect.mayoclinic.org/comment/1179093/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Nov 24, 2024

Comment

Hello @jiangmx24 I see that @dbamos1945 has already provided you with some information regard Histotripsy and...

https://connect.mayoclinic.org/comment/1179051/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Nov 24, 2024

Comment

I appreciate your kind remarks, @pamela1685. So many of on Connect have experienced a myriad of...

https://connect.mayoclinic.org/comment/1173905/

Discussion: How many doctors did you see to get to your NETS diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 15, 2024

Comment

Hello All .My name is Ladonna I live in Az now so went to seed Doctor...

https://connect.mayoclinic.org/comment/1173048/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 13, 2024

Comment

Yes, they want to do a needle biopsy. They say there slow growing so they want...

https://connect.mayoclinic.org/comment/1169811/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

Comment

@wilhelm I strongly agree w Teresa, Volunteer Mentor. When my NET on my carotid artery was...

https://connect.mayoclinic.org/comment/1166076/

Discussion: Anyone have a paraganglioma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2024

Comment

I actually expected them to surprise you with a surgery date sooner than 4-5 wks away....

https://connect.mayoclinic.org/comment/1263585/

Discussion: Was it difficult to determine if your paraganglioma was active?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2025

Comment

Hello. It's wonderful to hear that you've been living with the Merkel Cell for 11 years....

https://connect.mayoclinic.org/comment/1204731/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jan 5, 2025

Follow

7805

2 minutes ago

Follow

9596

16 minutes ago

Melanoma & Skin Cancer

Follow

864

16 minutes ago

Digestive Health

Follow

17615

56 minutes ago

Pancreatic Cancer

Follow

3403

56 minutes ago