Neuroendocrine Tumors (NETs) Support Group

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Comment

Yep, always out of the fridge for at least 12 hours before but it's not the...

https://connect.mayoclinic.org/comment/1305861/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2025

Comment

I was diagnosed at Stanford by Dr. Jeffrey Norton and his team. I have a genetic...

https://connect.mayoclinic.org/comment/1315141/

Discussion: New PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2025

Comment

Yes, please get a second opinion from a NETs multidisciplinary team familiar with DIPNECH before your...

https://connect.mayoclinic.org/comment/1208016/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2025

Comment

That's been my fear all along. I was not as enthusiastic about Watchful Waiting as my...

https://connect.mayoclinic.org/comment/1232215/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2025

Comment

I live in NY. My surgeon is at MSKCC. Mine was discovered 3 years ago. I...

https://connect.mayoclinic.org/comment/1232620/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2025

Comment

Thanks for letting me know all that . I was actually asking though how long ago...

https://connect.mayoclinic.org/comment/1238185/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2025

Comment

Hello @jocat74, It is always wise to consult with a NET specialist. Mayo Clinic has NET...

https://connect.mayoclinic.org/comment/1242526/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21, 2025

Comment

I have DIPNECH, also had my right middle lobe removed in October 2023. At this point,...

https://connect.mayoclinic.org/comment/1244351/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24, 2025

Comment

Thank you for sharing your journey and the encouragement. I hope you are disease free now....

https://connect.mayoclinic.org/comment/1398059/

Discussion: New pNET so scared

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2025

Comment

@lindabees Thank you for sharing. He has an oncologist that is local (we live in Southern...

https://connect.mayoclinic.org/comment/1404681/

Discussion: New pNET so scared

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2025

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