Neuroendocrine Tumors (NETs) Support Group

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Comment

I was diagnosed with atypical carcinoid of the lung that had metastasized to my lymph nodes....

https://connect.mayoclinic.org/comment/1025524/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2024

Comment

We live in Charleston, SC and he goes to a Roper Oncologist who specializes in NETS...

https://connect.mayoclinic.org/comment/998850/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2024

Comment

I literally couldn’t change the big thick pad I had to tape onto the wound where...

https://connect.mayoclinic.org/comment/990558/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 2, 2024

Comment

Good tips, @kgrear. One often has to be persistent. You sound like you know the importance...

https://connect.mayoclinic.org/comment/988632/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 30, 2023

Comment

Hello @terrycooper and welcome to the NETs support group on Mayo Connect. It looks like the...

https://connect.mayoclinic.org/comment/973219/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 1, 2023

Comment

@sop, I’m sorry to hear that your husband has been diagnosed with these rare tumors, but...

https://connect.mayoclinic.org/comment/943323/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

Comment

NET is a very rare cancer still and many experienced oncologists still have dealt with very...

https://connect.mayoclinic.org/comment/935280/

Discussion: Follow up surgery for PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2023

Comment

I have been going through the same thing! Symptoms but I get no answers. My doctors...

https://connect.mayoclinic.org/comment/934493/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2023

Comment

I can truly empathize as I have been living the same nightmare since last November. I...

https://connect.mayoclinic.org/comment/932111/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2023

Comment

That’s good news. Sounds like it was caught early. Like I said we all have different...

https://connect.mayoclinic.org/comment/913622/

Discussion: Anyone with an insulinoma have only therapies instead of surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

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