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Discussions (189)
Comments (2,051)
Comment
Chocolate and I are really good friends, and I refuse to give up my simple pleasures!...
https://connect.mayoclinic.org/comment/898928/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2023
Comment
Hi, your story sounds like mine. I had right middle lobe removed October 2023 due to...
https://connect.mayoclinic.org/comment/1329790/
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Discussion:
DIPNCEH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 18 10:22am
Comment
My dipnech was also found by chance, I had fallen down some steps and landed on...
https://connect.mayoclinic.org/comment/1143736/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 18, 2024
Comment
I am 75 and was diagnosed 6years ago, I had half my right lung removed and...
https://connect.mayoclinic.org/comment/1142704/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 16, 2024
Comment
@htam4- I live in Syracuse, NY. We have a very good Cancer center and I had...
https://connect.mayoclinic.org/comment/1089671/
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Discussion:
Pancreatic NETs: Looking to connect with anyone with insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 19, 2024
Comment
My tumor was around the tail of the pancreas, so I had distal pancreatectomy and splenectomy....
https://connect.mayoclinic.org/comment/1088225/
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Discussion:
NET in body of pancreas: What are my treatment options?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 16, 2024
Comment
I live within reach of Memorial Sloan Kettering so called just to get a 2nd opinion....
https://connect.mayoclinic.org/comment/1087269/
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Discussion:
On choosing a surgeon for pulmonary carcinoid resection…
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 15, 2024
Comment
I am in Florida. I feel lucky to be so close to Mayo Clinic. They do...
https://connect.mayoclinic.org/comment/1054510/
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Discussion:
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 21, 2024
Comment
Yes, of course. I live in Pamplona, in the north of Spain
https://connect.mayoclinic.org/comment/1054509/
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Discussion:
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 21, 2024
Comment
Patrick, were your tumors NET’s? Who is your oncologist at Barnes? I was diagnosed with a...
https://connect.mayoclinic.org/comment/1031029/
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Discussion:
High risk surgery. Is it worth it?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 10, 2024
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