Neuroendocrine Tumors (NETs) Support Group

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Comment

@outlawcancer, It sounds like you have been working on this diagnosis for a while, now. This...

https://connect.mayoclinic.org/comment/782731/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2022

Comment

I had a lobectomy. They did not crack my ribs to do it. They did it...

https://connect.mayoclinic.org/comment/775975/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

Comment

I live in Kissimmee I had made multiple trips and tomorrow need to stay at Jacksonville...

https://connect.mayoclinic.org/comment/772860/

Discussion: Might we have to Travel Twice to Mayo?

Support Group: Visiting Mayo Clinic

Posted: Nov 14, 2022

Comment

When reading your active surveillance that makes sense if my health and tumor are being watched....

https://connect.mayoclinic.org/comment/698101/

Discussion: Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma,

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2022

Comment

Hello All: For those of you who have had surgery for NETs in the thoracic area...

https://connect.mayoclinic.org/comment/631580/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 31, 2021

Comment

Hello @ahtaylor Thank you for your response to both my question as well as responding to...

https://connect.mayoclinic.org/comment/607498/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2021

Comment

I live in Southern California and cannot find a specialist who Is experienced as the condition...

https://connect.mayoclinic.org/comment/607402/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2021

Comment

When I had my tumor removed, there was no talk about any other surgery than open....

https://connect.mayoclinic.org/comment/134718/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2021

Comment

Thank you for your response. Without going into a lot of detail right now this is...

https://connect.mayoclinic.org/comment/334984/

Discussion: Metanephrines and the beginning stages (in a way) of a tumor search

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2021

Comment

UPDATE On January 6 we met with the oncologist. They feel that it is likely that...

https://connect.mayoclinic.org/comment/329144/

Discussion: Small bowel NET and colon cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2021

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