Neuroendocrine Tumors (NETs) Support Group

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So sorry that you are going through this. Have you tried other hospital systems that could...

https://connect.mayoclinic.org/comment/874394/

Discussion: Neuroendocrine tumor and carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2023

Comment

Hello Teresa and thank you for having me! I have had symptoms, but, as many people,...

https://connect.mayoclinic.org/comment/870403/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 1, 2023

Comment

I am also facing distal pancreatectomy with spleen removal and possible gall bladder removal. I was...

https://connect.mayoclinic.org/comment/853193/

Discussion: New diagnosis of NET: What should I know and do to plan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2023

Comment

Just going to say that I just finished my first week at Mayo and was SO...

https://connect.mayoclinic.org/comment/837793/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Comment

Hello, i know i have posted here before. it was a while ago i believe my...

https://connect.mayoclinic.org/comment/819254/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Comment

Memorial Sloan Kettering rocks in general. Lots of great people. After my surgery, there were no...

https://connect.mayoclinic.org/comment/812183/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Comment

Good luck to your wife. I’ve had chemo too, but not the pill. Had injections every...

https://connect.mayoclinic.org/comment/810971/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

Comment

Wow, sounds like your son has had a really rough go. I’m sorry to hear that...

https://connect.mayoclinic.org/comment/810108/

Discussion: determination of primary site of NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

Comment

Hi Colleen, thank you for your kind words. We are currently trying to get him an...

https://connect.mayoclinic.org/comment/809793/

Discussion: determination of primary site of NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11, 2023

Comment

Greetings....I am still standing and living a normal life at 85 with my disease in the...

https://connect.mayoclinic.org/comment/801669/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

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