Neuroendocrine Tumors (NETs) Support Group

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Comment

I have the same problem as you and always have low blood sugar syndrome. I tried...

https://connect.mayoclinic.org/comment/1088375/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2024

Comment

Hi @dipnech67 I would be happy to speak with you. I just sent you a private...

https://connect.mayoclinic.org/comment/1055386/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2024

Comment

Gig666, I am somewhat appalled that your docs didn't give you more options rather than just...

https://connect.mayoclinic.org/comment/1054944/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2024

Comment

Thank you for getting back to me. UMASS. Net specialist are not helpful. 74 yrs old,...

https://connect.mayoclinic.org/comment/1054704/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2024

Comment

From reading through the postings you may want to visit Ronny Allen’s website. He lives in...

https://connect.mayoclinic.org/comment/1046292/

Discussion: Atypical carcinoid tumour of the lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2024

Comment

My chemotherapy was difficult to deal with, it wasn’t immediate but accumulative effects were challenging. Fatigue,...

https://connect.mayoclinic.org/comment/1025991/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2024

Comment

After rangaling for a year between removing my left and living with tumors(3, 1 calcified), I've...

https://connect.mayoclinic.org/comment/1003342/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

Comment

Hello, I have a stage 3 lung NET. I found a lot of good information on...

https://connect.mayoclinic.org/comment/998253/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2024

Comment

Thank you. So you live in the Bay Area? I am having a consult with Natalie...

https://connect.mayoclinic.org/comment/992623/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2024

Comment

That sounds like a tough recovery. I live about 1 1/2 to 2 hours from Mayo...

https://connect.mayoclinic.org/comment/990195/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 2, 2024

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