Neuroendocrine Tumors (NETs) Support Group

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Comment

The Whipple procedure involves the resection of the head of the pancreas. This section is where...

https://connect.mayoclinic.org/comment/985469/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

Comment

My doctors would not listen to me at all! Just kept saying they don't know why...

https://connect.mayoclinic.org/comment/979673/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2023

Comment

Well I’m going to Mayo on the 11th for my 6 month gallium scan. I’ve been...

https://connect.mayoclinic.org/comment/940462/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Comment

Thank you so much for the detailed response. I don’t think I would be able to...

https://connect.mayoclinic.org/comment/933174/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

Comment

Hi @bellom, welcome. I moved your post to this existing discussion: - Just diagnosed with pancreatic...

https://connect.mayoclinic.org/comment/922124/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 31, 2023

Comment

We are strong! She has gone from stage 4 mass on pancreas and too numerous tumors...

https://connect.mayoclinic.org/comment/889675/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2023

Comment

Nice. Sounds like you still kind of lived there? Haha. That is awesome. We missed family...

https://connect.mayoclinic.org/comment/882025/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

Comment

It technically is two chemo pills; capecitabine and temozolomide. You will take more than two of...

https://connect.mayoclinic.org/comment/881550/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

Comment

Not experiencing any sores. Try to manage worrying. I read where many patients live for many...

https://connect.mayoclinic.org/comment/869518/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30, 2023

Comment

Oh it is so frustrating, isn't it? Someone told me that I should feel very comfortable...

https://connect.mayoclinic.org/comment/854520/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

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