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Discussions (191)
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Comment
That’s great it improved your allergies! In my allergy testing, it looked like I was allergic...
https://connect.mayoclinic.org/comment/1330268/
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Discussion:
DIPNCEH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 18 11:53pm
Comment
I just found out I have a second and maybe third paraganglioma, carotid body tumor, this...
https://connect.mayoclinic.org/comment/1163726/
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Discussion:
Anyone have a paraganglioma?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 27, 2024
Comment
I has dx’d with DIPNECH last fall after having my right middle lobe removed for 1...
https://connect.mayoclinic.org/comment/1143500/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 18, 2024
Comment
@rogo, I believe you are referring to lung carcinoid tumors with Diffuse Idiopathic Pulmonary NeuroEndocrine Cell...
https://connect.mayoclinic.org/comment/1070380/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 18, 2024
Comment
Hi. In December 2019 I had a biopsy that showed I had a 2cm non-functioning malignant...
https://connect.mayoclinic.org/comment/1067425/
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Discussion:
Grade 1 Non-functioning (NF) NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 13, 2024
Comment
Well, Gigg66 it sounds like you and your doctors do have a plan. I'm glad to...
https://connect.mayoclinic.org/comment/1062304/
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Discussion:
NET not found on PET/CT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 4, 2024
Comment
Thank you @tomrennie ! I think looking and acting positively is the best we can do!...
https://connect.mayoclinic.org/comment/1040350/
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Discussion:
Meet @pavalina60
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 26, 2024
Comment
Yes l have Nerocarcinoid, cancer! NETS. My breathing is labored, but l am going to do...
https://connect.mayoclinic.org/comment/1033764/
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Discussion:
High risk surgery. Is it worth it?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 15, 2024
Comment
Great point. My drainage was unusual - my doc thinks the resident took out a stitch...
https://connect.mayoclinic.org/comment/990297/
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Discussion:
Questions I should ask before surgery for Lung NETs?
Support Group:
Lung Cancer
Posted: Jan 2, 2024
Comment
The Whipple procedure involves the resection of the head of the pancreas. This section is where...
https://connect.mayoclinic.org/comment/985469/
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Discussion:
Weight Loss after Whipple: What strategies helped you?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 23, 2023
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