Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi, I know this is an older post but I have just been diagnosed with paraganglioma...

https://connect.mayoclinic.org/comment/1231874/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 8:48pm

Comment

Hello how are you? I'm sorry you had to go through this. I tell you, my...

https://connect.mayoclinic.org/comment/1237580/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15 12:48pm

Comment

Santa Barbara is beautiful. I've lived all over southern California.

https://connect.mayoclinic.org/comment/1228166/

Discussion: Histotripsy near St. Louis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 3 12:00am

Comment

I am so sorry to hear about your son. The word cancer is very scary. If...

https://connect.mayoclinic.org/comment/1230250/

Discussion: Adrenocortical carcinoma (ACC) outcomes: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5 4:53pm

Comment

Most people have replied about CgA. I live in Uk and have grade 1, small bowel...

https://connect.mayoclinic.org/comment/1091150/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2024

Comment

Do you identify as a member of the LGBTQI community, are 50 years or older, and...

https://connect.mayoclinic.org/comment/912680/

Discussion: Mayo Clinic research survey: LGBTQI+ persons with a serious illness

Support Group: LGBTQIA Health

Posted: Aug 14, 2023

Comment

I’m sorry you’re going through this. We also lived in California when my husband was first...

https://connect.mayoclinic.org/comment/1205903/

Discussion: Hello. I am new here. My husband was recently diagnosed with NETs.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7 9:24am

Comment

Great question, and yes we are completely aware of the extent of immosuppressive drugs that are...

https://connect.mayoclinic.org/comment/1198319/

Discussion: Wondering if we are making the right choices in our NET fight.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Comment

I’ve had excellent care! Been palliative care since diagnosis. I go to University of Michigan Medical...

https://connect.mayoclinic.org/comment/1190982/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2024

Comment

Everyone I consulted with--from UNM to NYU--said the only treatment for NET in breast is the...

https://connect.mayoclinic.org/comment/907122/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

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