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Discussions (191)
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Comment
Hi, I know this is an older post but I have just been diagnosed with paraganglioma...
https://connect.mayoclinic.org/comment/1231874/
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Discussion:
Paraganglioma / Carotid Body Tumor Question
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 7 8:48pm
Comment
Hello how are you? I'm sorry you had to go through this. I tell you, my...
https://connect.mayoclinic.org/comment/1237580/
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Discussion:
Diagnosed with NET si-NET Stage 1 Grade 1
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 15 12:48pm
Comment
Santa Barbara is beautiful. I've lived all over southern California.
https://connect.mayoclinic.org/comment/1228166/
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Discussion:
Histotripsy near St. Louis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 3 12:00am
Comment
I am so sorry to hear about your son. The word cancer is very scary. If...
https://connect.mayoclinic.org/comment/1230250/
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Discussion:
Adrenocortical carcinoma (ACC) outcomes: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 5 4:53pm
Comment
Most people have replied about CgA. I live in Uk and have grade 1, small bowel...
https://connect.mayoclinic.org/comment/1091150/
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Discussion:
What is a normal range for Chromogranin A test? Mine was 99 in 2021.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 21, 2024
Comment
Do you identify as a member of the LGBTQI community, are 50 years or older, and...
https://connect.mayoclinic.org/comment/912680/
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Discussion:
Mayo Clinic research survey: LGBTQI+ persons with a serious illness
Support Group:
LGBTQIA Health
Posted: Aug 14, 2023
Comment
I’m sorry you’re going through this. We also lived in California when my husband was first...
https://connect.mayoclinic.org/comment/1205903/
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Discussion:
Hello. I am new here. My husband was recently diagnosed with NETs.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 7 9:24am
Comment
Great question, and yes we are completely aware of the extent of immosuppressive drugs that are...
https://connect.mayoclinic.org/comment/1198319/
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Discussion:
Wondering if we are making the right choices in our NET fight.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 27, 2024
Comment
I’ve had excellent care! Been palliative care since diagnosis. I go to University of Michigan Medical...
https://connect.mayoclinic.org/comment/1190982/
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Discussion:
Living with Neuroendocrine NETS, any advice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 15, 2024
Comment
Everyone I consulted with--from UNM to NYU--said the only treatment for NET in breast is the...
https://connect.mayoclinic.org/comment/907122/
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Discussion:
Neuroendocrine cells in Breast and Lungs DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 3, 2023
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