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Discussions (161)
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Comment
I go to KU Med, and they have always scheduled my PET scans for the day...
https://connect.mayoclinic.org/comment/896642/
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Discussion:
How long do I wait between injections and PET scans.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 16, 2023
Comment
Ask your doctors about adding Temozolimide to your regimen. It is an oral chemotherapy that is...
https://connect.mayoclinic.org/comment/885907/
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Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 27, 2023
Comment
I am feeling pretty well thank you. Came back from a 3 mile hike with my...
https://connect.mayoclinic.org/comment/881898/
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Discussion:
My Sister and Best Friend
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 20, 2023
Comment
I’m well. Thank you for checking. I just had a scan in Rochester that they said...
https://connect.mayoclinic.org/comment/879762/
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Discussion:
Should I see a NET specialist?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 16, 2023
Comment
I had my first visit today with one of the smartest, intuitive doctors I’ve ever been...
https://connect.mayoclinic.org/comment/873214/
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Discussion:
Neuroendocrine tumor and carcinoid tumor
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 5, 2023
Comment
My son in law had is spleen removed at a very young age due to an...
https://connect.mayoclinic.org/comment/857839/
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Discussion:
Has anyone chosen the Watch and Wait and regretted that choice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 10, 2023
Comment
What a remarkable story of your journey with paraganglioma, @patriciagsr. You have certainly been proactive in...
https://connect.mayoclinic.org/comment/857217/
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Discussion:
Paraganglioma / Carotid Body Tumor Question
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 9, 2023
Comment
Welcome @helloitsme, so glad you reached out to this group. I’m also glad to hear you’re...
https://connect.mayoclinic.org/comment/851440/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 29, 2023
Comment
Hi @helloitsme, your reaction to finding out you have NETs is normal. Even though NETs is...
https://connect.mayoclinic.org/comment/851198/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 29, 2023
Comment
Hello, I had a 6.8cm pheochromocytoma and had a right adrenalectomy March 17th. My scans do...
https://connect.mayoclinic.org/comment/846343/
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Discussion:
What do I need to know about NETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 20, 2023
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