Neuroendocrine Tumors (NETs) Support Group

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Comment

What a remarkable story of your journey with paraganglioma, @patriciagsr. You have certainly been proactive in...

https://connect.mayoclinic.org/comment/857217/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 9, 2023

Comment

Welcome @helloitsme, so glad you reached out to this group. I’m also glad to hear you’re...

https://connect.mayoclinic.org/comment/851440/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Comment

Hi @helloitsme, your reaction to finding out you have NETs is normal. Even though NETs is...

https://connect.mayoclinic.org/comment/851198/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Comment

Hello, I had a 6.8cm pheochromocytoma and had a right adrenalectomy March 17th. My scans do...

https://connect.mayoclinic.org/comment/846343/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2023

Comment

It was very helpful and encouraging to read your comments . I have not met or...

https://connect.mayoclinic.org/comment/845625/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2023

Comment

A gentle reminder about the Community Guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/#ch-tab-navigation In particular I'd like to point out guidelines...

https://connect.mayoclinic.org/comment/838930/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

Comment

Wow--thanks for asking! On a practical level, radiation will be done at my local regional cancer...

https://connect.mayoclinic.org/comment/819982/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2023

Comment

Hi, I am living in Adelaide. South Australia. I went through chemo with non Hodgkins lymphoma...

https://connect.mayoclinic.org/comment/819077/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Comment

I'm so glad for the update, @mir123. It sounds like you have a plan for treatment....

https://connect.mayoclinic.org/comment/819071/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Comment

Hi Angela! I would really like you to get ahold of copies of all your tests...

https://connect.mayoclinic.org/comment/817135/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

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