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Discussions (159)
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Comment
I have been going through the same thing! Symptoms but I get no answers. My doctors...
https://connect.mayoclinic.org/comment/934493/
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Discussion:
Carcinoid syndrome; NET not found
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 22, 2023
Comment
I can truly empathize as I have been living the same nightmare since last November. I...
https://connect.mayoclinic.org/comment/932111/
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Discussion:
Ways to control hypoglycemia caused by insulinoma in pancreas?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 18, 2023
Comment
That’s good news. Sounds like it was caught early. Like I said we all have different...
https://connect.mayoclinic.org/comment/913622/
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Discussion:
Anyone with an insulinoma have only therapies instead of surgery?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 15, 2023
Comment
@briea You mentioned that you were thinking about another opinion. I would highly recommend that. You...
https://connect.mayoclinic.org/comment/913563/
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Discussion:
Anyone with an insulinoma have only therapies instead of surgery?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 15, 2023
Comment
My best advice is to have the surgery if your doctor recommends it. Don't be afraid...
https://connect.mayoclinic.org/comment/902822/
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Discussion:
What do I need to know about NETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 26, 2023
Comment
Aww thank uuu!! I'm going to try and keep smiling thru this and fighting for ALL...
https://connect.mayoclinic.org/comment/901285/
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Discussion:
Finally got my NETSPOT Scan approved by my medical insurance
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 24, 2023
Comment
Chocolate and I are really good friends, and I refuse to give up my simple pleasures!...
https://connect.mayoclinic.org/comment/898928/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2023
Comment
@ronjake, I’ve been on injections of Octreotide for 5+ years and only had a lump twice...
https://connect.mayoclinic.org/comment/898742/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 19, 2023
Comment
I go to KU Med, and they have always scheduled my PET scans for the day...
https://connect.mayoclinic.org/comment/896642/
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Discussion:
How long do I wait between injections and PET scans.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 16, 2023
Comment
Ask your doctors about adding Temozolimide to your regimen. It is an oral chemotherapy that is...
https://connect.mayoclinic.org/comment/885907/
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Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 27, 2023
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