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Discussions (191)
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Comment
@gg66: Agree with all above, unfortunately, NETS stinks! HOWEVER, if we were given a choice between...
https://connect.mayoclinic.org/comment/1191208/
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Discussion:
Living with Neuroendocrine NETS, any advice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 15, 2024
Comment
"How much was removed did they reconnect, did you wear a colostomy bag?" They removed approximately...
https://connect.mayoclinic.org/comment/1312645/
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Discussion:
Any one have experience with Dr J Maxwell (surgical oncologist) at MD
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 25 2:12pm
Comment
Hello? 👋 can’t believe I’m reading this about paraganglioma and carotid body tumor. This is what...
https://connect.mayoclinic.org/comment/1322538/
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Discussion:
Paraganglioma / Carotid Body Tumor Question
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 7 7:57pm
Comment
May husband has an endocrino tumor , it seems that it expand to the líver si...
https://connect.mayoclinic.org/comment/1306540/
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Discussion:
Neuroendocrine Carcinoma with Liver Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 18 12:10am
Comment
My husband has been getting Lanreotide injections for 2 1/2 years after a)having surgery to remove...
https://connect.mayoclinic.org/comment/1332000/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 21 12:09pm
Comment
Hi Colleen I was seen at Mayo in Scottsdale when I lived there in 2012. I’m...
https://connect.mayoclinic.org/comment/1318256/
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Discussion:
Paraganglioma / Carotid Body Tumor Question
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 2 12:31am
Comment
Thank you very much for your reply. I am happy to hear that everything was well...
https://connect.mayoclinic.org/comment/1205704/
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Discussion:
Any advice for someone recently diagnosed with NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 7 5:11am
Comment
I also have struggled with this in the past. Limiting salt can help. My surgeon suggested...
https://connect.mayoclinic.org/comment/1191512/
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Discussion:
Anyone have experience with Acites?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 16, 2024
Comment
Hello @jlw218 and welcome to Neuroendocrine support group on Mayo Connect. I appreciate your helpfulness to...
https://connect.mayoclinic.org/comment/1177317/
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Discussion:
Neuroendocrine insulinoma and MDS
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 21, 2024
Comment
Thank you, Colleen, It is nice to have a connection with people on the same road....
https://connect.mayoclinic.org/comment/1075210/
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Discussion:
Paraganglioma / Carotid Body Tumor Question
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 26, 2024
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